{"id":10171,"date":"2024-07-04T14:36:09","date_gmt":"2024-07-04T13:36:09","guid":{"rendered":"https:\/\/bnssghealthiertogether.org.uk\/?page_id=10171"},"modified":"2025-04-16T16:48:51","modified_gmt":"2025-04-16T15:48:51","slug":"what-have-we-done-so-far","status":"publish","type":"page","link":"https:\/\/bnssghealthiertogether.org.uk\/pl\/our-work\/neurodiversity-transformation-programme\/what-have-we-done-so-far\/","title":{"rendered":"Neurodiversity Transformation Programme: What have we done so far?"},"content":{"rendered":"<div class=\"assembler_default-group assembler_module_group assembler_default-group_1 assembler_module_group_1\"><div class=\"assembler_module_area assembler_module_area_1\"><div class=\"assembler_table-of-contents-module assembler_module assembler_table-of-contents-module_1 assembler_module_1  transparent\"><a tabindex=\"-1\" title=\"Section titled module-1\" id=\"module-1\" href=\"https:\/\/bnssghealthiertogether.org.uk\/pl\/wp-json\/wp\/v2\/pages\/10171\/#module-1\" class=\"anchor\"><span class=\"hidden\">Section titled module-1<\/span><\/a><!-- Template found for table-of-contents-module - Template: template-table-of-contents - Matched: _only -->\r\n<section class=\"w-full mx-auto max-w-content border-b border-pale-grey pt-6 sm:pt-12 pb-3 sm:pb-6\">\r\n    <div class=\"entry-content w-full\">\r\n    <h1>Neurodiversity Transformation Programme<\/h1>\n<p>Contents<\/p>\n    <div class=\"navigation-list\">\r\n                    <ul>\r\n                      <li class=\"text-sm\">\r\n                              <a href=\"https:\/\/bnssghealthiertogether.org.uk\/pl\/our-work\/neurodiversity-transformation-programme\/\" class=\"text-sm underline-offset-4 font-normal hover:!underline-4\">\r\n                                                                About the programme                                <\/a>\r\n                          <\/li>\r\n                                <li class=\"text-sm\">\r\n                              <a href=\"https:\/\/bnssghealthiertogether.org.uk\/pl\/our-work\/neurodiversity-transformation-programme\/autism-and-adhd-assessment\/\" class=\"text-sm underline-offset-4 font-normal hover:!underline-4\">\r\n                                                                Autism and ADHD assessment capacity and waiting times                                <\/a>\r\n                          <\/li>\r\n                      <li class=\"text-sm\">\r\n                                                              What have we done so far?                            <\/li>\r\n                      <li class=\"text-sm\">\r\n                              <a href=\"https:\/\/bnssghealthiertogether.org.uk\/pl\/our-work\/neurodiversity-transformation-programme\/waiting-well\/\" class=\"text-sm underline-offset-4 font-normal hover:!underline-4\">\r\n                                                                Waiting well: improving support for children who are awaiting assessment                                <\/a>\r\n                          <\/li>\r\n                      <li class=\"text-sm\">\r\n                              <a href=\"https:\/\/bnssghealthiertogether.org.uk\/pl\/our-work\/neurodiversity-transformation-programme\/advice-and-guidance-for-families\/\" class=\"text-sm underline-offset-4 font-normal hover:!underline-4\">\r\n                                                                Advice and guidance for families                                <\/a>\r\n                          <\/li>\r\n                  <\/ul>\r\n          <\/div>\r\n  <\/div>\r\n<\/section><\/div><!-- .assembler_table-of-contents-module.assembler_module.assembler_table-of-contents-module_1.assembler_module_1..transparent --><div class=\"assembler_text-module assembler_module assembler_text-module_2 assembler_module_2  transparent\"><a tabindex=\"-1\" title=\"Section titled module-2\" id=\"module-2\" href=\"https:\/\/bnssghealthiertogether.org.uk\/pl\/wp-json\/wp\/v2\/pages\/10171\/#module-2\" class=\"anchor\"><span class=\"hidden\">Section titled module-2<\/span><\/a><!-- Template found for text-module - Template: template-text - Matched: _only --><section class=\"w-full mx-auto max-w-content pt-3 sm:pt-6 pb-3 sm:pb-6\">\r\n  <div class=\"entry-content w-full !px-0 max-w-small\">\r\n        <h1>What have we done so far?<\/h1>\n<p>The first phase of the Neurodiversity Transformation Programme has focused on understanding the challenges local families face and exploring possible solutions together.<\/p>\n<p>The voices and experiences of local parent carers, children and young people are central to this work. We\u2019ve engaged with people in a variety of ways \u2013 you can click on the links below to read more about activity to date.<\/p>\n<p>Parent carers are also directly involved in the leadership of the programme. The three local Parent Carer Forums for <a href=\"https:\/\/www.bristolparentcarers.org.uk\/\" rel=\"noopener\">Bristol<\/a>, <a href=\"https:\/\/www.nspcwt.org\/\" rel=\"noopener\">North Somerset<\/a> and <a href=\"https:\/\/sgpc.org.uk\/\" rel=\"noopener\">South Gloucestershire<\/a> jointly lead the programme with the local NHS Integrated Care Board. Together, we are working closely with a wide range of programme partners including health, care and education services, Healthwatch and local charities such as Barnardo\u2019s.<\/p>\n  <\/div>\r\n  <\/section><\/div><!-- .assembler_text-module.assembler_module.assembler_text-module_2.assembler_module_2..transparent --><div class=\"assembler_drop-down-module assembler_module assembler_drop-down-module_3 assembler_module_3  transparent\"><a tabindex=\"-1\" title=\"Section titled module-3\" id=\"module-3\" href=\"https:\/\/bnssghealthiertogether.org.uk\/pl\/wp-json\/wp\/v2\/pages\/10171\/#module-3\" class=\"anchor\"><span class=\"hidden\">Section titled module-3<\/span><\/a><!-- Template found for drop-down-module - Template: template-dropdowns - Matched: _only --><section class=\"max-w-content pt-3 sm:pt-6 pb-0 sm:pb-0 mx-auto\">\n\n  <h3 class=\"bg-dropdown-btn hover:underline focus:underline expanded\">\n    Listening events, surveys and insight    <i class=\"pl-2 rotate-90 fak fa-right-arrow [.expanded_&]:rotate-180 [.expanded_&]:align-[-.125em] align-baseline text-[0.86em]\"><\/i>\n  <\/h3>\n\n  <section class=\"w-full mx-auto bg-drop-down-content\">\n  <div class=\"entry-content w-full !px-0 max-w-small\">\n    <p>The programme\u2019s work is informed by insight from a wide range of organisations and sources.<\/p>\n<ul>\n<li>We joined each of the local Parent Carer Forums in our area for a comprehensive \u2018listening event\u2019 to gain insight into parent carers&#8217; challenges and experiences and identify ways we could improve the current autism and ADHD pathways<\/li>\n<li>We met with around 20 local organisations involved with the care of children and young people, to understand their priorities for support and service development.<\/li>\n<li>We worked with Barnardo\u2019s Autism Group in Bristol, North Somerset and South Gloucestershire, as well as Bristol Autism Support, to gather insight from local families and children and young people.<\/li>\n<li>We reviewed existing published insight into the challenges local parent carers, children and young people face<\/li>\n<li>We gathered views from local families who had undergone an assessment for a neurodiverse need, as well as those awaiting an assessment, to understand their experiences and expectations of assessments.<\/li>\n<\/ul>\n  <\/div>\n  <\/section>\n\n<\/section>\n<\/div><!-- .assembler_drop-down-module.assembler_module.assembler_drop-down-module_3.assembler_module_3..transparent --><div class=\"assembler_drop-down-module assembler_module assembler_drop-down-module_4 assembler_module_4  transparent\"><a tabindex=\"-1\" title=\"Section titled module-4\" id=\"module-4\" href=\"https:\/\/bnssghealthiertogether.org.uk\/pl\/wp-json\/wp\/v2\/pages\/10171\/#module-4\" class=\"anchor\"><span class=\"hidden\">Section titled module-4<\/span><\/a><!-- Template found for drop-down-module - Template: template-dropdowns - Matched: _only --><section class=\"max-w-content pt-3 sm:pt-6 pb-0 sm:pb-0 mx-auto\">\n\n  <h3 class=\"bg-dropdown-btn hover:underline focus:underline expanded\">\n    Discovery conference: November 2023    <i class=\"pl-2 rotate-90 fak fa-right-arrow [.expanded_&]:rotate-180 [.expanded_&]:align-[-.125em] align-baseline text-[0.86em]\"><\/i>\n  <\/h3>\n\n  <section class=\"w-full mx-auto bg-drop-down-content\">\n  <div class=\"entry-content w-full !px-0 max-w-small\">\n    <p>We held two large-scale conferences bringing together parent carers with health, education and care services, charities and other groups involved in the care of neurodivergent children and young people.<\/p>\n<p>The \u2018Discovery\u2019 conference in November 2023 explored how early needs are identified, and the impact on children and families when those needs are not met. It also looked at the causes of the increase in referrals for autism and ADHD assessment, and families\u2019 experience of support following assessment.<\/p>\n<p><a href=\"https:\/\/bnssghealthiertogether.org.uk\/wp-content\/uploads\/2024\/07\/Neurodiversity-Transformation-Discovery-Conference-outputs-Nov-2023-2.pdf\">Neurodiversity Transformation Discovery Conference 2023 outputs (PDF)<\/a><\/p>\n<p>Hear reflections from people who went to the conference in the following video.<\/p>\n<div class=\"embed_wrapper\"><iframe title=\"Neurodiversity Transformation Discovery Conference - November 2023\" width=\"640\" height=\"360\" src=\"https:\/\/www.youtube.com\/embed\/0ak8ZidQs5U?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/div>\n  <\/div>\n  <\/section>\n\n<\/section>\n<\/div><!-- .assembler_drop-down-module.assembler_module.assembler_drop-down-module_4.assembler_module_4..transparent --><div class=\"assembler_drop-down-module assembler_module assembler_drop-down-module_5 assembler_module_5  transparent\"><a tabindex=\"-1\" title=\"Section titled module-5\" id=\"module-5\" href=\"https:\/\/bnssghealthiertogether.org.uk\/pl\/wp-json\/wp\/v2\/pages\/10171\/#module-5\" class=\"anchor\"><span class=\"hidden\">Section titled module-5<\/span><\/a><!-- Template found for drop-down-module - Template: template-dropdowns - Matched: _only --><section class=\"max-w-content pt-3 sm:pt-6 pb-0 sm:pb-0 mx-auto\">\n\n  <h3 class=\"bg-dropdown-btn hover:underline focus:underline expanded\">\n    Design conference: March 2024    <i class=\"pl-2 rotate-90 fak fa-right-arrow [.expanded_&]:rotate-180 [.expanded_&]:align-[-.125em] align-baseline text-[0.86em]\"><\/i>\n  <\/h3>\n\n  <section class=\"w-full mx-auto bg-drop-down-content\">\n  <div class=\"entry-content w-full !px-0 max-w-small\">\n    <p>The \u2018Design\u2019 conference in March 2024 built on the November event to explore how we can improve early needs identification. We also considered how we can improve support for children and young people and their families and how we can break the diagnostic \u2018barrier\u2019 standing in the way of meeting children\u2019s needs.<\/p>\n<p>The Design conference generated nearly 400 ideas across the three themes, covering the different stages of childhood from 0-5 years through to 16-plus.<\/p>\n<p><a href=\"https:\/\/bnssghealthiertogether.org.uk\/wp-content\/uploads\/2024\/07\/Neurodiversity-Transformation-Design-Conference-outputs-March-2024.pdf\">Neurodiversity Transformation Design Conference March 2024 outputs (PDF)<\/a><\/p>\n<p>Hear reflections from people who went to the conference in the following video.<\/p>\n<div class=\"embed_wrapper\"><iframe title=\"Neurodiversity Transformation Design Conference - March 2024\" width=\"640\" height=\"360\" src=\"https:\/\/www.youtube.com\/embed\/6fTTMMzs7gc?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/div>\n  <\/div>\n  <\/section>\n\n<\/section>\n<\/div><!-- .assembler_drop-down-module.assembler_module.assembler_drop-down-module_5.assembler_module_5..transparent --><div class=\"assembler_text-module assembler_module assembler_text-module_6 assembler_module_6  transparent\"><a tabindex=\"-1\" title=\"Section titled module-6\" id=\"module-6\" href=\"https:\/\/bnssghealthiertogether.org.uk\/pl\/wp-json\/wp\/v2\/pages\/10171\/#module-6\" class=\"anchor\"><span class=\"hidden\">Section titled module-6<\/span><\/a><!-- Template found for text-module - Template: template-text - Matched: _only --><section class=\"w-full mx-auto max-w-content pt-3 sm:pt-6 pb-10 sm:pb-20\">\r\n  <div class=\"entry-content w-full !px-0 max-w-small\">\r\n        <p>We are now reviewing the ideas generated in this first phase of the programme, to create a shortlist for further development and testing in the second phase. We\u2019ll publish updates on this work here, so make sure to bookmark this page and visit in the future.<\/p>\n<p>We are also exploring <a href=\"https:\/\/bnssghealthiertogether.org.uk\/our-work\/neurodiversity-transformation-programme\/waiting-well\/\">measures to quickly improve support for children and families currently awaiting an assessment<\/a>.<\/p>\n  <\/div>\r\n  <\/section><\/div><!-- .assembler_text-module.assembler_module.assembler_text-module_6.assembler_module_6..transparent --><\/div><!-- .assembler_module_area.assembler_module_area_1 --><\/div><!-- .assembler_default-group.assembler_module_group.assembler_default-group_1.assembler_module_group_1  -->","protected":false},"excerpt":{"rendered":"<p>Section titled module-1 Neurodiversity Transformation Programme Contents About the programme Autism and ADHD assessment capacity and waiting times What have we done so far? Waiting well: improving support for children who are awaiting assessment Advice and guidance for families Section titled module-2 What have we done so far? The first phase of the Neurodiversity Transformation [&hellip;]<\/p>\n","protected":false},"author":7,"featured_media":0,"parent":10164,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"tags":[],"class_list":["post-10171","page","type-page","status-publish","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/bnssghealthiertogether.org.uk\/pl\/wp-json\/wp\/v2\/pages\/10171","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/bnssghealthiertogether.org.uk\/pl\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/bnssghealthiertogether.org.uk\/pl\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/bnssghealthiertogether.org.uk\/pl\/wp-json\/wp\/v2\/users\/7"}],"replies":[{"embeddable":true,"href":"https:\/\/bnssghealthiertogether.org.uk\/pl\/wp-json\/wp\/v2\/comments?post=10171"}],"version-history":[{"count":30,"href":"https:\/\/bnssghealthiertogether.org.uk\/pl\/wp-json\/wp\/v2\/pages\/10171\/revisions"}],"predecessor-version":[{"id":38923,"href":"https:\/\/bnssghealthiertogether.org.uk\/pl\/wp-json\/wp\/v2\/pages\/10171\/revisions\/38923"}],"up":[{"embeddable":true,"href":"https:\/\/bnssghealthiertogether.org.uk\/pl\/wp-json\/wp\/v2\/pages\/10164"}],"wp:attachment":[{"href":"https:\/\/bnssghealthiertogether.org.uk\/pl\/wp-json\/wp\/v2\/media?parent=10171"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/bnssghealthiertogether.org.uk\/pl\/wp-json\/wp\/v2\/tags?post=10171"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}