{"id":34500,"date":"2024-11-26T16:39:49","date_gmt":"2024-11-26T16:39:49","guid":{"rendered":"https:\/\/bnssghealthiertogether.org.uk\/?page_id=34500"},"modified":"2025-01-16T21:55:52","modified_gmt":"2025-01-16T21:55:52","slug":"inclusivity-in-stroke-self-management-support-issmas-co-designing-resources-to-improve-self-management-by-black-african-and-afro-caribbean-communities-living-with-stroke-in-the-uk","status":"publish","type":"page","link":"https:\/\/bnssghealthiertogether.org.uk\/ro\/integrated-care-board\/research-and-evidence\/our-research-portfolio\/nihr-funded-projects\/inclusivity-in-stroke-self-management-support-issmas-co-designing-resources-to-improve-self-management-by-black-african-and-afro-caribbean-communities-living-with-stroke-in-the-uk\/","title":{"rendered":"Incluziune \u00een sprijinul pentru autogestionarea accidentului vascular cerebral (ISSMAS): Co-proiectare de resurse pentru \u00eembun\u0103t\u0103\u021birea autogestion\u0103rii \u00een comunit\u0103\u021bile de persoane de culoare africane \u0219i afro-caraibiene care tr\u0103iesc cu accident vascular cerebral \u00een Regatul Unit"},"content":{"rendered":"
Sec\u021biunea intitulat\u0103 modul-1<\/span><\/a>
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Incluziune \u00een sprijinul pentru autogestionarea accidentului vascular cerebral (ISSMAS): Co-proiectare de resurse pentru \u00eembun\u0103t\u0103\u021birea autogestion\u0103rii \u00een comunit\u0103\u021bile de persoane de culoare africane \u0219i afro-caraibiene care tr\u0103iesc cu accident vascular cerebral \u00een Regatul Unit<\/h1>\n

 <\/p>\n

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Finan\u021bare<\/h2>\n<\/article>\n

Institutul Na\u021bional pentru Cercetare \u00een S\u0103n\u0103tate \u0219i \u00cengrijire (NIHR) Cercetare \u00een Beneficiul Pacientului (RfPB) Ref. NIHR204975.<\/p>\n

Care este problema?<\/h2>\n

Persoanele de culoare sunt mai predispuse la un accident vascular cerebral dec\u00e2t persoanele albe \u0219i experimenteaz\u0103 accidentul vascular cerebral la o v\u00e2rst\u0103 mai t\u00e2n\u0103r\u0103. Acestea sunt afectate \u00een special de afec\u021biuni precum anemie falciform\u0103 \u0219i diabetul, care le cresc riscul de accident vascular cerebral.<\/p>\n

Totu\u0219i, pacien\u021bii cu BPLS descriu c\u0103 nu primesc informa\u021biile \u0219i sfaturile potrivite care s\u0103 \u00eei ajute (i) s\u0103 \u00ee\u0219i gestioneze eficient s\u0103n\u0103tatea \u0219i (ii) s\u0103 \u00een\u021beleag\u0103 cum s\u0103 reduc\u0103 riscul unui alt accident vascular cerebral.<\/p>\n

Aceast\u0103 situa\u021bie este par\u021bial legat\u0103 de modalit\u0103\u021bile neincluzive din punct de vedere cultural \u00een care sunt prezentate \u0219i distribuite informa\u021biile \u0219i de comunicarea deficitar\u0103 cu profesioni\u0219tii din domeniul s\u0103n\u0103t\u0103\u021bii \u0219i al \u00eengrijirii.<\/p>\n

Introducerea de materiale mai bune, care s\u0103 r\u0103spund\u0103 nevoilor persoanelor cu BPLS \u0219i care sunt mai accesibile, ar putea \u00eembun\u0103t\u0103\u021bi considerabil parcursul s\u0103n\u0103t\u0103\u021bii \u0219i bun\u0103starea persoanelor cu BPLS, ar putea aborda unele dintre inegalit\u0103\u021bile cu care se confrunt\u0103 \u0219i ar putea reduce costurile pentru NHS.<\/p>\n

Care este scopul cercet\u0103rii?<\/h2>\n

Proiectul nostru \u00ee\u0219i propune s\u0103 afle de la persoanele de culoare care tr\u0103iesc cu accident vascular cerebral (BPLS) ce informa\u021bii \u0219i sfaturi le-ar ajuta cel mai bine s\u0103 \u00ee\u0219i gestioneze s\u0103n\u0103tatea dup\u0103 un accident vascular cerebral \u0219i s\u0103 colaboreze cu BPLS \u0219i profesioni\u0219tii din domeniul s\u0103n\u0103t\u0103\u021bii \u0219i \u00eengrijirii (HCP) pentru a produce noi materiale care s\u0103 r\u0103spund\u0103 nevoilor BPLS.<\/p>\n

Cum se va realiza acest lucru?<\/h2>\n

Vom folosi o abordare numit\u0103 co-design bazat pe experien\u021b\u0103 \u00eentr-un proces pas cu pas.<\/p>\n

Vom intervieva p\u00e2n\u0103 la 24 de asisten\u021bi sociali de la Bristol (BPLS) cu experien\u021be \u0219i medii diferite din Bristol \u0219i Londra pentru a le \u00een\u021belege priorit\u0103\u021bile \u00een materie de informa\u021bii \u0219i consiliere.<\/p>\n

Apoi vom reuni grupuri separate de 10 BPLS \u0219i 10 HCP cu experien\u021b\u0103 \u00een sprijinirea persoanelor dup\u0103 un accident vascular cerebral pentru a discuta ce s-a constatat \u00een interviuri \u0219i a confirma priorit\u0103\u021bile.<\/p>\n

Apoi, colabor\u00e2nd ca parteneri egali, dou\u0103 echipe comune formate din BPLS \u0219i HCP-uri vor planifica materiale pentru a r\u0103spunde domeniilor prioritare. Una
\nEchipa se va concentra direct pe BPLS, iar cealalt\u0103 pe profesioni\u0219tii din domeniul s\u0103n\u0103t\u0103\u021bii, pentru a ajuta la \u00eembun\u0103t\u0103\u021birea modului \u00een care ace\u0219tia comunic\u0103 \u0219i partajeaz\u0103 informa\u021bii \u0219i sfaturi.<\/p>\n

Materialele pot include scurtmetraje, pliante \u0219i\/sau \u00eendrum\u0103ri online; formatul lor final va deveni clar doar prin munca noastr\u0103 de co-design. Materialele vor fi produse profesional.<\/p>\n

Vom verifica din nou cu echipele noastre de co-proiectare, cu al\u021bi parteneri de proiect, de exemplu, cu organiza\u021bii comunitare, \u0219i cu Grupul nostru de Implicare a Pacien\u021bilor \u0219i a Publicului (PPI) dac\u0103 acestea sunt acceptabile \u0219i probabil vor avea un impact.<\/p>\n

BPLS se afl\u0103 \u00een centrul proiectului nostru. BPLS a eviden\u021biat necesitatea acestei activit\u0103\u021bi \u00een timpul unui studiu anterior. BPLS sunt reprezentate \u00een echipele de proiect \u0219i de co-proiect. Grupul nostru PPI (BPLS \u0219i \u00eengrijitori) a lucrat cu noi din 2019 \u0219i a contribuit la dezvoltarea propunerii noastre de proiect.<\/p>\n

Materialele produse \u0219i \u00eenv\u0103\u021b\u0103mintele dob\u00e2ndite \u00een urma proiectului nostru vor fi disponibile imediat organiza\u021biilor partenere. \u00cen cadrul activit\u0103\u021bilor ulterioare, inten\u021bion\u0103m s\u0103 implement\u0103m \u0219i s\u0103 test\u0103m materialele pentru a le afla eficacitatea \u0219i cum pot fi dezvoltate \u0219i \u00eembun\u0103t\u0103\u021bite pentru distribuirea viitoare.<\/p>\n

Cine conduce cercetarea?<\/h2>\n

Dr. Joanna White<\/a>, Cercet\u0103tor senior, Universitatea din Vestul Angliei.<\/p>\n

Informa\u021bii suplimentare:<\/h2>\n

Pentru mai multe informa\u021bii sau pentru a v\u0103 implica \u00een acest proiect, trimite\u021bi un e-mail la bnssg.research@nhs.net<\/a>.<\/p>\n

Opiniile exprimate sunt cele ale autorului (autorilor) \u0219i nu neap\u0103rat cele ale NIHR sau ale Departamentului de S\u0103n\u0103tate \u0219i Asisten\u021b\u0103 Social\u0103.<\/p>\n <\/div>\r\n <\/section><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"

Section titled module-1 Inclusivity in Stroke Self-Management Support (ISSMAS): Co-designing resources to improve self-management by black African and Afro-Caribbean communities living with stroke in the UK   Funding National Institute for Health and Care Research (NIHR) Research for Patient Benefit (RfPB) Ref. NIHR204975. What is the problem? Black people are more likely to have a […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":32881,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"tags":[],"class_list":["post-34500","page","type-page","status-publish","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/bnssghealthiertogether.org.uk\/ro\/wp-json\/wp\/v2\/pages\/34500","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/bnssghealthiertogether.org.uk\/ro\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/bnssghealthiertogether.org.uk\/ro\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/bnssghealthiertogether.org.uk\/ro\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/bnssghealthiertogether.org.uk\/ro\/wp-json\/wp\/v2\/comments?post=34500"}],"version-history":[{"count":3,"href":"https:\/\/bnssghealthiertogether.org.uk\/ro\/wp-json\/wp\/v2\/pages\/34500\/revisions"}],"predecessor-version":[{"id":36161,"href":"https:\/\/bnssghealthiertogether.org.uk\/ro\/wp-json\/wp\/v2\/pages\/34500\/revisions\/36161"}],"up":[{"embeddable":true,"href":"https:\/\/bnssghealthiertogether.org.uk\/ro\/wp-json\/wp\/v2\/pages\/32881"}],"wp:attachment":[{"href":"https:\/\/bnssghealthiertogether.org.uk\/ro\/wp-json\/wp\/v2\/media?parent=34500"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/bnssghealthiertogether.org.uk\/ro\/wp-json\/wp\/v2\/tags?post=34500"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}