{"id":34647,"date":"2024-11-26T17:05:54","date_gmt":"2024-11-26T17:05:54","guid":{"rendered":"https:\/\/bnssghealthiertogether.org.uk\/?page_id=34647"},"modified":"2024-11-26T17:05:54","modified_gmt":"2024-11-26T17:05:54","slug":"how-can-we-identify-and-support-children-with-life-limiting-conditions-with-complex-polypharmacy-the-polypill-project","status":"publish","type":"page","link":"https:\/\/bnssghealthiertogether.org.uk\/ro\/integrated-care-board\/research-and-evidence\/our-research-portfolio\/type-2-rcf-funded-projects\/how-can-we-identify-and-support-children-with-life-limiting-conditions-with-complex-polypharmacy-the-polypill-project\/","title":{"rendered":"Cum putem identifica \u0219i sprijini copiii cu afec\u021biuni care le limiteaz\u0103 via\u021ba \u0219i care utilizeaz\u0103 polifarmacie complex\u0103? \u2013 proiectul PolyPiLL"},"content":{"rendered":"
Sec\u021biunea intitulat\u0103 modul-1<\/span><\/a>
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Cum putem identifica \u0219i sprijini copiii cu afec\u021biuni care le limiteaz\u0103 via\u021ba \u0219i care utilizeaz\u0103 polifarmacie complex\u0103? \u2013 proiectul PolyPiLL<\/h1>\n

Finan\u021bare<\/h2>\n

Finan\u021barea capacit\u0103\u021bii de cercetare BNSSG ICB.<\/p>\n

Care este \u00eentrebarea de cercetare?<\/h2>\n

Cum putem identifica \u0219i sprijini copiii cu afec\u021biuni limitatoare de via\u021b\u0103 care sufer\u0103 de polifarmacie complex\u0103?<\/p>\n

Care este problema?<\/h2>\n

Mul\u021bi copii cu nevoi complexe sau afec\u021biuni care le limiteaz\u0103 via\u021ba necesit\u0103 mai multe medicamente (polifarmacie), adesea pentru perioade lungi de timp, ceea ce ridic\u0103 \u00eengrijor\u0103ri cu privire la siguran\u021ba pacientului. P\u0103rin\u021bii\/\u00eengrijitorii sunt adesea nevoi\u021bi s\u0103 coordoneze un regim de administrare complicat \u0219i o comunicare extins\u0103 cu mai mul\u021bi profesioni\u0219ti din domeniul s\u0103n\u0103t\u0103\u021bii \u00eentr-o varietate de contexte, ceea ce cre\u0219te cererea de timp a acestora. Prescrierea \u0219i furnizarea medicamentelor pot fi responsabilitatea mai multor furnizori de servicii medicale separa\u021bi (medici de familie, speciali\u0219ti pediatri, farmacii comunitare sau spitalice\u0219ti), cu o supraveghere colectiv\u0103 redus\u0103.<\/p>\n

Ini\u021biativele na\u021bionale \u0219i interna\u021bionale privind polifarmacia au ca scop \u00eembun\u0103t\u0103\u021birea siguran\u021bei gestion\u0103rii medicamentelor pentru to\u021bi. De\u0219i polifarmacia \u0219i problemele aferente pe care le creeaz\u0103 pentru pacien\u021bi \u0219i profesioni\u0219tii din domeniul s\u0103n\u0103t\u0103\u021bii au fost \u00een centrul ini\u021biativelor de cercetare \u0219i \u00eembun\u0103t\u0103\u021bire pentru pacien\u021bii adul\u021bi, se cunosc pu\u021bine lucruri despre impactul polifarmaciei asupra copiilor cu afec\u021biuni limitatoare de via\u021b\u0103, asupra familiilor\/\u00eengrijitorilor acestora sau asupra celei mai bune modalit\u0103\u021bi de a-i sprijini.<\/p>\n

Care este scopul cercet\u0103rii?<\/h2>\n

Aceast\u0103 cercetare va \u00eembun\u0103t\u0103\u021bi \u00een\u021belegerea noastr\u0103 asupra problemelor ridicate de polifarmacie la copiii \u0219i tinerii cu afec\u021biuni care le limiteaz\u0103 via\u021ba. \u00cen multe cazuri, copiii cu afec\u021biuni care le limiteaz\u0103 via\u021ba nu pot evita necesitatea administr\u0103rii mai multor medicamente, a\u0219adar scopul acestei cercet\u0103ri este de a explora modalit\u0103\u021bile de a minimiza daunele inutile aduse pacientului \u0219i de a simplifica procesul de gestionare a medicamentelor pentru p\u0103rin\u021bi\/\u00eengrijitori. Aceast\u0103 \u00een\u021belegere a experien\u021bei pacientului \u0219i a familiei, combinat\u0103 cu contribu\u021biile colegilor clinicieni, va sprijini dezvoltarea unui proces de identificare \u0219i sprijinire a persoanelor cu polifarmacie complex\u0103 sau problematic\u0103, \u00eentr-o manier\u0103 centrat\u0103 pe persoan\u0103.<\/p>\n

De\u0219i dep\u0103\u0219e\u0219te sfera de competen\u021b\u0103 a acestei cereri de finan\u021bare RCF-2, \u00een cele din urm\u0103, aceast\u0103 abordare ar asigura c\u0103 orice contribu\u021bie a unui farmacist specialist sau a unui clinician pentru \u00eembun\u0103t\u0103\u021birea siguran\u021bei pacien\u021bilor \u0219i sprijinirea copiilor \u0219i a familiilor la domiciliu este direc\u021bionat\u0103 c\u0103tre cei mai nevoia\u0219i \u0219i c\u0103 rezultatele unei interven\u021bii pot fi m\u0103surabile. Evaluarea acestor interven\u021bii specializate \u0219i specifice ar face obiectul unei cereri de finan\u021bare NIHR RfPB \u00een timp util.<\/p>\n

Cum se va realiza acest lucru?<\/h2>\n

Acest studiu va consta \u00een trei faze, \u00eencep\u00e2nd cu o analiz\u0103 a literaturii de specialitate care se va concentra pe identificarea polifarmaciei complexe \u0219i pe interven\u021biile pentru a minimiza riscul pacientului \u0219i povara \u00eengrijitorului.<\/p>\n

\u00cen faza a doua, interviurile cu copiii\/tinerii \u0219i p\u0103rin\u021bii acestora vor oferi dovezi calitative despre nevoile \u0219i preocup\u0103rile lor legate de gestionarea medicamentelor. Acestea vor fi completate cu interviuri cu personalul clinic (medici pediatri, asistente medicale, farmaci\u0219ti) despre modul \u00een care identific\u0103 polifarmacia complex\u0103 sau problematic\u0103 \u0219i ce ar semnala nevoia de sprijin suplimentar pentru familii.<\/p>\n

\u00cen faza a treia, concluziile din fazele 1 \u0219i 2 vor fi \u00eemp\u0103rt\u0103\u0219ite cu p\u0103r\u021bile interesate \u00een cadrul unui eveniment de consens. Printre p\u0103r\u021bile interesate s-ar num\u0103ra pacien\u021bi \u0219i familii, medici din diverse contexte \u0219i medii, precum \u0219i comisari. Rezultatele acestui proces ar duce la crearea \u00een comun a unui instrument pentru identificarea polifarmaciei complexe sau problematice \u0219i la sugestii pentru sprijin profesional \u00een vederea \u00eembun\u0103t\u0103\u021birii gestion\u0103rii sigure, eficiente \u0219i eficace a medicamentelor.<\/p>\n

Cine conduce cercetarea?<\/h2>\n

Dr. Nicky Harris, cercet\u0103tor, Centrul pentru S\u0103n\u0103tate \u0219i Cercetare Clinic\u0103 UWE<\/p>\n

Informa\u021bii suplimentare:<\/h2>\n

Pentru mai multe informa\u021bii sau pentru a v\u0103 implica \u00een acest proiect, v\u0103 rug\u0103m s\u0103 contacta\u021bi bnssg.research@nhs.net<\/p>\n <\/div>\r\n <\/section><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"

Section titled module-1 How can we identify and support children with life-limiting conditions with complex polypharmacy? \u2013 the PolyPiLL project Funding BNSSG ICB Research Capability Funding. What is the research question? How can we identify and support children with life-limiting conditions with complex polypharmacy? What is the problem? Many children with complex needs or life-limiting […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":32896,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"tags":[],"class_list":["post-34647","page","type-page","status-publish","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/bnssghealthiertogether.org.uk\/ro\/wp-json\/wp\/v2\/pages\/34647","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/bnssghealthiertogether.org.uk\/ro\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/bnssghealthiertogether.org.uk\/ro\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/bnssghealthiertogether.org.uk\/ro\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/bnssghealthiertogether.org.uk\/ro\/wp-json\/wp\/v2\/comments?post=34647"}],"version-history":[{"count":2,"href":"https:\/\/bnssghealthiertogether.org.uk\/ro\/wp-json\/wp\/v2\/pages\/34647\/revisions"}],"predecessor-version":[{"id":34649,"href":"https:\/\/bnssghealthiertogether.org.uk\/ro\/wp-json\/wp\/v2\/pages\/34647\/revisions\/34649"}],"up":[{"embeddable":true,"href":"https:\/\/bnssghealthiertogether.org.uk\/ro\/wp-json\/wp\/v2\/pages\/32896"}],"wp:attachment":[{"href":"https:\/\/bnssghealthiertogether.org.uk\/ro\/wp-json\/wp\/v2\/media?parent=34647"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/bnssghealthiertogether.org.uk\/ro\/wp-json\/wp\/v2\/tags?post=34647"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}