{"id":34500,"date":"2024-11-26T16:39:49","date_gmt":"2024-11-26T16:39:49","guid":{"rendered":"https:\/\/bnssghealthiertogether.org.uk\/?page_id=34500"},"modified":"2025-01-16T21:55:52","modified_gmt":"2025-01-16T21:55:52","slug":"inclusivity-in-stroke-self-management-support-issmas-co-designing-resources-to-improve-self-management-by-black-african-and-afro-caribbean-communities-living-with-stroke-in-the-uk","status":"publish","type":"page","link":"https:\/\/bnssghealthiertogether.org.uk\/sq\/integrated-care-board\/research-and-evidence\/our-research-portfolio\/nihr-funded-projects\/inclusivity-in-stroke-self-management-support-issmas-co-designing-resources-to-improve-self-management-by-black-african-and-afro-caribbean-communities-living-with-stroke-in-the-uk\/","title":{"rendered":"P\u00ebrfshirja n\u00eb Mb\u00ebshtetjen p\u00ebr Vet\u00eb-Menaxhimin e Goditjes n\u00eb Tru (ISSMAS): Bashk\u00eb-hartimi i burimeve p\u00ebr t\u00eb p\u00ebrmir\u00ebsuar vet\u00ebmenaxhimin nga komunitetet afrikano-amerikane dhe afro-karaibeane q\u00eb jetojn\u00eb me goditje n\u00eb tru n\u00eb Mbret\u00ebrin\u00eb e Bashkuar."},"content":{"rendered":"
Seksioni me titull module-1<\/span><\/a>
\r\n
\r\n

P\u00ebrfshirja n\u00eb Mb\u00ebshtetjen p\u00ebr Vet\u00eb-Menaxhimin e Goditjes n\u00eb Tru (ISSMAS): Bashk\u00eb-hartimi i burimeve p\u00ebr t\u00eb p\u00ebrmir\u00ebsuar vet\u00ebmenaxhimin nga komunitetet afrikano-amerikane dhe afro-karaibeane q\u00eb jetojn\u00eb me goditje n\u00eb tru n\u00eb Mbret\u00ebrin\u00eb e Bashkuar.<\/h1>\n

 <\/p>\n

\n

Financimi<\/h2>\n<\/article>\n

Instituti Komb\u00ebtar p\u00ebr K\u00ebrkime n\u00eb Sh\u00ebndet\u00ebsi dhe Kujdes (NIHR) K\u00ebrkime p\u00ebr P\u00ebrfitimin e Pacientit (RfPB) Ref. NIHR204975.<\/p>\n

Cili \u00ebsht\u00eb problemi?<\/h2>\n

Njer\u00ebzit me ngjyr\u00eb kan\u00eb m\u00eb shum\u00eb gjasa t\u00eb p\u00ebsojn\u00eb goditje n\u00eb tru sesa njer\u00ebzit e bardh\u00eb dhe e p\u00ebrjetojn\u00eb goditjen n\u00eb tru n\u00eb nj\u00eb mosh\u00eb m\u00eb t\u00eb re. Ata preken ve\u00e7an\u00ebrisht nga gjendje t\u00eb tilla si anemia drepanocitare dhe diabeti, t\u00eb cilat rrisin rrezikun e goditjes n\u00eb tru.<\/p>\n

Megjithat\u00eb, personat me aft\u00ebsi t\u00eb kufizuara n\u00eb pacient\u00eb (BPLS) p\u00ebrshkruajn\u00eb se nuk kan\u00eb marr\u00eb informacionin dhe k\u00ebshillat e duhura p\u00ebr t'i ndihmuar ata (i) t\u00eb menaxhojn\u00eb sh\u00ebndetin e tyre n\u00eb m\u00ebnyr\u00eb efektive dhe (ii) t\u00eb kuptojn\u00eb se si t\u00eb zvog\u00eblojn\u00eb mund\u00ebsin\u00eb e nj\u00eb goditjeje tjet\u00ebr n\u00eb tru.<\/p>\n

Kjo situat\u00eb lidhet pjes\u00ebrisht me m\u00ebnyrat jo-gjith\u00ebp\u00ebrfshir\u00ebse nga ana kulturore t\u00eb prezantimit dhe shp\u00ebrndarjes s\u00eb informacionit, si dhe me komunikimin e dob\u00ebt me profesionist\u00ebt e sh\u00ebndetit dhe kujdesit.<\/p>\n

Prezantimi i materialeve m\u00eb t\u00eb mira q\u00eb plot\u00ebsojn\u00eb nevojat e BPLS dhe jan\u00eb m\u00eb t\u00eb arritshme mund ta p\u00ebrmir\u00ebsoj\u00eb shum\u00eb udh\u00ebtimin sh\u00ebndet\u00ebsor dhe mir\u00ebqenien e BPLS, t\u00eb trajtoj\u00eb disa nga pabarazit\u00eb me t\u00eb cilat p\u00ebrballen dhe t\u00eb zvog\u00ebloj\u00eb kostot p\u00ebr NHS-n\u00eb.<\/p>\n

Cili \u00ebsht\u00eb q\u00ebllimi i hulumtimit?<\/h2>\n

Projekti yn\u00eb synon t\u00eb zbuloj\u00eb nga njer\u00ebzit me ngjyr\u00eb q\u00eb jetojn\u00eb me goditje n\u00eb tru (BPLS) se \u00e7far\u00eb informacioni dhe k\u00ebshillash do t'i ndihmonin m\u00eb s\u00eb miri ata t\u00eb menaxhonin sh\u00ebndetin e tyre pas nj\u00eb goditjeje n\u00eb tru dhe t\u00eb bashk\u00ebpunoj\u00eb me BPLS dhe profesionist\u00ebt e sh\u00ebndetit dhe kujdesit (HCP) p\u00ebr t\u00eb prodhuar materiale t\u00eb reja p\u00ebr t\u00eb p\u00ebrmbushur nevojat e BPLS.<\/p>\n

Si do t\u00eb arrihet kjo?<\/h2>\n

Ne do t\u00eb p\u00ebrdorim nj\u00eb qasje t\u00eb quajtur Bashk\u00eb-dizajn i Bazuar n\u00eb P\u00ebrvoj\u00eb n\u00eb nj\u00eb proces hap pas hapi.<\/p>\n

Do t\u00eb intervistojm\u00eb deri n\u00eb 24 BPLS me prejardhje dhe p\u00ebrvoja t\u00eb ndryshme nga Bristoli dhe Londra p\u00ebr t\u00eb kuptuar prioritetet e tyre p\u00ebr informacion dhe k\u00ebshilla.<\/p>\n

Pastaj do t\u00eb bashkojm\u00eb grupe t\u00eb ndara prej 10 BPLS dhe 10 HCP me p\u00ebrvoj\u00eb n\u00eb mb\u00ebshtetjen e njer\u00ebzve pas nj\u00eb goditjeje n\u00eb tru p\u00ebr t\u00eb diskutuar at\u00eb q\u00eb u zbulua n\u00eb intervista dhe p\u00ebr t\u00eb konfirmuar prioritetet.<\/p>\n

Pastaj, duke bashk\u00ebpunuar si partner\u00eb t\u00eb barabart\u00eb, dy ekipe t\u00eb p\u00ebrbashk\u00ebta t\u00eb BPLS dhe HCP do t\u00eb planifikojn\u00eb materiale p\u00ebr t'iu p\u00ebrgjigjur fushave prioritare. Nj\u00ebri
\nNj\u00eb ekip do t\u00eb p\u00ebrqendrohet drejtp\u00ebrdrejt n\u00eb BPLS dhe tjetri te profesionist\u00ebt e sh\u00ebndetit, p\u00ebr t\u00eb ndihmuar n\u00eb p\u00ebrmir\u00ebsimin e m\u00ebnyr\u00ebs se si ata komunikojn\u00eb dhe ndajn\u00eb informacion dhe k\u00ebshilla.<\/p>\n

Materialet mund t\u00eb p\u00ebrfshijn\u00eb filma t\u00eb shkurt\u00ebr, flet\u00ebpalosje dhe\/ose udh\u00ebzime online; formati i tyre p\u00ebrfundimtar do t\u00eb b\u00ebhet i qart\u00eb vet\u00ebm p\u00ebrmes pun\u00ebs son\u00eb t\u00eb p\u00ebrbashk\u00ebt n\u00eb dizajn. Materialet do t\u00eb prodhohen n\u00eb m\u00ebnyr\u00eb profesionale.<\/p>\n

Do t\u00eb verifikojm\u00eb p\u00ebrs\u00ebri me ekipet tona t\u00eb bashk\u00eb-dizajnimit, partner\u00ebt e tjer\u00eb t\u00eb projektit, p.sh. organizatat me baz\u00eb n\u00eb komunitet dhe Grupin ton\u00eb t\u00eb P\u00ebrfshirjes s\u00eb Pacient\u00ebve dhe Publikut (PPI) n\u00ebse ato jan\u00eb t\u00eb pranueshme dhe ka t\u00eb ngjar\u00eb t\u00eb ken\u00eb ndikim.<\/p>\n

BPLS jan\u00eb n\u00eb zem\u00ebr t\u00eb projektit ton\u00eb. BPLS theksoi nevoj\u00ebn p\u00ebr k\u00ebt\u00eb pun\u00eb gjat\u00eb nj\u00eb studimi t\u00eb m\u00ebparsh\u00ebm. BPLS p\u00ebrfaq\u00ebsohet n\u00eb ekipet e projektit dhe t\u00eb bashk\u00eb-dizajnimit. Grupi yn\u00eb PPI (BPLS dhe kujdestar\u00ebt) ka punuar me ne q\u00eb nga viti 2019 dhe ka ndihmuar n\u00eb zhvillimin e propozimit ton\u00eb t\u00eb projektit.<\/p>\n

Materialet e prodhuara dhe m\u00ebsimet e nxjerra nga projekti yn\u00eb do t\u00eb jen\u00eb menj\u00ebher\u00eb n\u00eb dispozicion t\u00eb organizatave partnere. N\u00eb pun\u00ebn pasuese synojm\u00eb t'i zbatojm\u00eb dhe testojm\u00eb materialet p\u00ebr t\u00eb zbuluar efektivitetin e tyre dhe se si mund t\u00eb zhvillohen dhe p\u00ebrmir\u00ebsohen p\u00ebr shp\u00ebrndarje n\u00eb t\u00eb ardhmen.<\/p>\n

Kush po e udh\u00ebheq hulumtimin?<\/h2>\n

Dr. Joanna White<\/a>, Bashk\u00ebpun\u00ebtor i Lart\u00eb K\u00ebrkimor, Universiteti i Anglis\u00eb Per\u00ebndimore.<\/p>\n

Informacione t\u00eb m\u00ebtejshme:<\/h2>\n

P\u00ebr m\u00eb shum\u00eb informacion ose p\u00ebr t'u p\u00ebrfshir\u00eb n\u00eb k\u00ebt\u00eb projekt, d\u00ebrgoni email bnssg.research@nhs.net<\/a>.<\/p>\n

Pik\u00ebpamjet e shprehura jan\u00eb ato t\u00eb autorit\/autor\u00ebve dhe jo domosdoshm\u00ebrisht ato t\u00eb NIHR ose t\u00eb Departamentit t\u00eb Sh\u00ebndet\u00ebsis\u00eb dhe Kujdesit Social.<\/p>\n <\/div>\r\n <\/section><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"

Section titled module-1 Inclusivity in Stroke Self-Management Support (ISSMAS): Co-designing resources to improve self-management by black African and Afro-Caribbean communities living with stroke in the UK   Funding National Institute for Health and Care Research (NIHR) Research for Patient Benefit (RfPB) Ref. NIHR204975. What is the problem? Black people are more likely to have a […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":32881,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"tags":[],"class_list":["post-34500","page","type-page","status-publish","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/pages\/34500","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/comments?post=34500"}],"version-history":[{"count":3,"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/pages\/34500\/revisions"}],"predecessor-version":[{"id":36161,"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/pages\/34500\/revisions\/36161"}],"up":[{"embeddable":true,"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/pages\/32881"}],"wp:attachment":[{"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/media?parent=34500"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/tags?post=34500"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}