{"id":34563,"date":"2024-11-26T16:50:54","date_gmt":"2024-11-26T16:50:54","guid":{"rendered":"https:\/\/bnssghealthiertogether.org.uk\/?page_id=34563"},"modified":"2025-01-19T20:20:14","modified_gmt":"2025-01-19T20:20:14","slug":"a-patient-reported-questionnaire-to-measure-the-use-of-informal-care-social-care-and-personal-expenses","status":"publish","type":"page","link":"https:\/\/bnssghealthiertogether.org.uk\/sq\/integrated-care-board\/research-and-evidence\/our-research-portfolio\/previously-supported-projects\/a-patient-reported-questionnaire-to-measure-the-use-of-informal-care-social-care-and-personal-expenses\/","title":{"rendered":"Nj\u00eb pyet\u00ebsor i raportuar nga pacient\u00ebt p\u00ebr t\u00eb matur p\u00ebrdorimin e kujdesit informal, kujdesit social dhe shpenzimeve personale"},"content":{"rendered":"
Seksioni me titull module-1<\/span><\/a>
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Nj\u00eb pyet\u00ebsor i raportuar nga pacient\u00ebt p\u00ebr t\u00eb matur p\u00ebrdorimin e kujdesit informal, kujdesit social dhe shpenzimeve personale<\/h1>\n<\/div>\n<\/header>\n
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Financimi<\/h2>\n<\/article>\n

Instituti Komb\u00ebtar i Sh\u00ebndetit (NIHR) K\u00ebrkime p\u00ebr P\u00ebrfitimin e Pacientit (RfPB) Ref. NIHR201961<\/p>\n

Cila \u00ebsht\u00eb pyetja k\u00ebrkimore?<\/h2>\n

Ne synojm\u00eb t\u00eb zhvillojm\u00eb module t\u00eb validuara p\u00ebr nj\u00eb pyet\u00ebsor t\u00eb p\u00ebrdorimit t\u00eb burimeve t\u00eb raportuar nga pacient\u00ebt p\u00ebr t\u00eb vler\u00ebsuar kostot e kujdesit n\u00eb studime t\u00eb kontrolluara t\u00eb rast\u00ebsishme (RCT) dhe mjedise t\u00eb tjera k\u00ebrkimore.<\/p>\n

Cili \u00ebsht\u00eb problemi?<\/h2>\n

Ekonomist\u00ebt e sh\u00ebndetit kryejn\u00eb studime t\u00eb efektivitetit t\u00eb kostos p\u00ebr t\u00eb p\u00ebrcaktuar n\u00ebse nj\u00eb kujdes i ve\u00e7ant\u00eb ofron vler\u00eb t\u00eb mir\u00eb.<\/p>\n

N\u00eb nj\u00eb studim t\u00eb efektivitetit t\u00eb kostos, ne duhet t\u00eb masim si koston e vet\u00eb kujdesit ashtu edhe efektin e tij n\u00eb sh\u00ebrbimet e tjera q\u00eb p\u00ebrdorin pacient\u00ebt. P\u00ebr momentin, metoda jon\u00eb e matjes s\u00eb kostove nuk \u00ebsht\u00eb ideale.<\/p>\n

Cili \u00ebsht\u00eb q\u00ebllimi i hulumtimit?<\/h2>\n

Aktualisht po hartojm\u00eb nj\u00eb pyet\u00ebsor p\u00ebr t\u00eb pyetur rreth kujdesit sh\u00ebndet\u00ebsor t\u00eb NHS-s\u00eb (si\u00e7 jan\u00eb takimet me mjekun e p\u00ebrgjithsh\u00ebm) me kontributin e pacient\u00ebve. Megjithat\u00eb, shum\u00eb njer\u00ebz p\u00ebrdorin kujdes q\u00eb ofrohet jasht\u00eb NHS-s\u00eb.<\/p>\n

N\u00eb k\u00ebt\u00eb projekt, synojm\u00eb t\u00eb zgjerojm\u00eb pyet\u00ebsorin e kujdesit sh\u00ebndet\u00ebsor duke zhvilluar tre module t\u00eb tjera.<\/p>\n

I pari do t'i pyes\u00eb pacient\u00ebt rreth kujdesit social q\u00eb kan\u00eb p\u00ebrdorur (p.sh. ndihm\u00eb n\u00eb sht\u00ebpi).<\/p>\n

E dyta do t\u00eb mbuloj\u00eb kujdesin joformal, si\u00e7 \u00ebsht\u00eb ndihma nga nj\u00eb partner ose mik.<\/p>\n

Moduli i fundit do t\u00eb pyes\u00eb p\u00ebr kostot q\u00eb pacient\u00ebt i kan\u00eb paguar vet\u00eb.<\/p>\n

Si do t\u00eb arrihet kjo?<\/h2>\n

P\u00ebr t\u00eb zhvilluar modulet, s\u00eb pari do t\u00eb p\u00ebrcaktojm\u00eb se cilat pyetje duhet t\u00eb p\u00ebrfshihen duke shqyrtuar pun\u00ebn e botuar dhe duke shqyrtuar pyet\u00ebsor\u00ebt ekzistues. Gjithashtu, do t'u k\u00ebrkojm\u00eb ekspert\u00ebve t\u00eb kujdesit social sh\u00ebrbime q\u00eb ata mendojn\u00eb se jan\u00eb t\u00eb r\u00ebnd\u00ebsishme.<\/p>\n

Do t\u00eb zhvillojm\u00eb nj\u00eb diskutim n\u00eb grup me studiues dhe p\u00ebrfaq\u00ebsues publik\u00eb p\u00ebr t\u00eb p\u00ebrcaktuar se cilat sugjerime jan\u00eb m\u00eb t\u00eb r\u00ebnd\u00ebsishme p\u00ebr t'u matur.<\/p>\n

Ne do t\u00eb hartojm\u00eb draft module duke shkruar pyetje q\u00eb p\u00ebrfaq\u00ebsojn\u00eb praktikat m\u00eb t\u00eb mira. Do t\u00eb intervistojm\u00eb af\u00ebrsisht 20 studiues me telefon p\u00ebr t\u00eb zbuluar n\u00ebse ata mendojn\u00eb se modulet jan\u00eb t\u00eb plota dhe n\u00ebse \u00ebsht\u00eb e mundur t\u00eb gjejm\u00eb informacion mbi koston p\u00ebr secil\u00ebn pyetje.<\/p>\n

Pastaj do t\u00eb intervistojm\u00eb rreth 25 pacient\u00eb, p\u00ebrdorues kujdesi ose kujdestar\u00eb p\u00ebr t\u00eb m\u00ebsuar pik\u00ebpamjet e tyre. Do t\u00eb p\u00ebrdorim metodat e 'mendimit me z\u00eb t\u00eb lart\u00eb', ku njer\u00ebzve do t'u k\u00ebrkohet t\u00eb plot\u00ebsojn\u00eb pyet\u00ebsorin nd\u00ebrsa p\u00ebrshkruajn\u00eb mendimet e tyre me z\u00eb t\u00eb lart\u00eb. Kjo do t\u00eb na lejoj\u00eb t\u00eb m\u00ebsojm\u00eb n\u00ebse ka ndonj\u00eb fush\u00eb q\u00eb \u00ebsht\u00eb e v\u00ebshtir\u00eb p\u00ebr t'u kuptuar ose plot\u00ebsuar, si dhe t\u00eb b\u00ebjm\u00eb p\u00ebrmir\u00ebsime t\u00eb m\u00ebtejshme.<\/p>\n

Kur t\u00eb p\u00ebrfundojn\u00eb k\u00ebto faza, ne do ta postojm\u00eb pyet\u00ebsorin te rreth 250 an\u00ebtar\u00eb t\u00eb publikut p\u00ebr t\u00eb testuar se sa i pranuesh\u00ebm \u00ebsht\u00eb n\u00eb praktik\u00eb. M\u00eb pas do t\u00eb finalizojm\u00eb formulimin bazuar n\u00eb reagimet. Gjithashtu do t\u00eb p\u00ebrgatisim lista t\u00eb kostove p\u00ebrkat\u00ebse p\u00ebr t\u00eb shoq\u00ebruar pyet\u00ebsorin.<\/p>\n

Rezultati i projektit do t\u00eb jet\u00eb nj\u00eb pyet\u00ebsor modular i gatsh\u00ebm p\u00ebr p\u00ebrdorim p\u00ebr k\u00ebrkime mbi nj\u00eb gam\u00eb t\u00eb gjer\u00eb s\u00ebmundjesh dhe gjendjesh sh\u00ebndet\u00ebsore.<\/p>\n

Kush po e udh\u00ebheq hulumtimin?<\/h2>\n

Dr. Joanna Thorn, Bashk\u00ebpun\u00ebtore K\u00ebrkimore, Shkencat e Sh\u00ebndetit t\u00eb Popullsis\u00eb, Universiteti i Bristolit.<\/p>\n

Informacione t\u00eb m\u00ebtejshme:<\/h2>\n

Dr. Joanna Thorn<\/a><\/p>\n

P\u00ebr m\u00eb shum\u00eb informacion ose p\u00ebr t'u p\u00ebrfshir\u00eb n\u00eb k\u00ebt\u00eb projekt, d\u00ebrgoni email bnssg.research@nhs.net<\/a>.<\/p>\n

Pik\u00ebpamjet e shprehura jan\u00eb ato t\u00eb autorit\/autor\u00ebve dhe jo domosdoshm\u00ebrisht ato t\u00eb NIHR ose t\u00eb Departamentit t\u00eb Sh\u00ebndet\u00ebsis\u00eb dhe Kujdesit Social.<\/p>\n <\/div>\r\n <\/section><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"

Section titled module-1 A patient-reported questionnaire to measure the use of informal care, social care and personal expenses Funding National Institute for Health (NIHR) Research for Patient Benefit (RfPB) Ref. NIHR201961 What is the research question? We aim to develop validated modules for a patient-reported resource-use questionnaire to estimate care costs in randomised controlled trials […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":32891,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"tags":[],"class_list":["post-34563","page","type-page","status-publish","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/pages\/34563","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/comments?post=34563"}],"version-history":[{"count":3,"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/pages\/34563\/revisions"}],"predecessor-version":[{"id":36228,"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/pages\/34563\/revisions\/36228"}],"up":[{"embeddable":true,"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/pages\/32891"}],"wp:attachment":[{"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/media?parent=34563"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/tags?post=34563"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}