{"id":44463,"date":"2025-11-14T13:52:56","date_gmt":"2025-11-14T13:52:56","guid":{"rendered":"https:\/\/bnssghealthiertogether.org.uk\/?page_id=44463"},"modified":"2025-11-14T13:52:56","modified_gmt":"2025-11-14T13:52:56","slug":"supporting-people-with-intellectual-disabilities-and-their-families-following-a-diagnosis-of-dementia-adapting-the-living-well-with-dementia-livdem-approach","status":"publish","type":"page","link":"https:\/\/bnssghealthiertogether.org.uk\/sq\/integrated-care-board\/research-and-evidence\/our-research-portfolio\/type-2-rcf-funded-projects\/supporting-people-with-intellectual-disabilities-and-their-families-following-a-diagnosis-of-dementia-adapting-the-living-well-with-dementia-livdem-approach\/","title":{"rendered":"Mb\u00ebshtetja e personave me aft\u00ebsi t\u00eb kufizuara intelektuale dhe familjeve t\u00eb tyre pas diagnoz\u00ebs s\u00eb demenc\u00ebs: P\u00ebrshtatja e qasjes s\u00eb t\u00eb jetuarit mir\u00eb me demenc\u00eb (LivDem)."},"content":{"rendered":"
Seksioni me titull module-1<\/span><\/a>
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Mb\u00ebshtetja e personave me aft\u00ebsi t\u00eb kufizuara intelektuale dhe familjeve t\u00eb tyre pas diagnoz\u00ebs s\u00eb demenc\u00ebs: P\u00ebrshtatja e qasjes s\u00eb t\u00eb jetuarit mir\u00eb me demenc\u00eb (LivDem).<\/h1>\n

 <\/p>\n

Financimi<\/h2>\n

Financimi i Aft\u00ebsive K\u00ebrkimore ICB t\u00eb NHS Bristol, North Somerset dhe South Gloucestershire.<\/p>\n

Cila \u00ebsht\u00eb pyetja k\u00ebrkimore?<\/h2>\n

Si mund ta p\u00ebrshtasim programin \u201cT\u00eb jetosh mir\u00eb me demenc\u00eb\u201d (LivDem) p\u00ebr t\u00eb mb\u00ebshtetur njer\u00ebzit me aft\u00ebsi t\u00eb kufizuara intelektuale dhe familjet e tyre pas nj\u00eb diagnoze t\u00eb demenc\u00ebs?<\/p>\n

Cili \u00ebsht\u00eb problemi?<\/h2>\n

Njer\u00ebzit me aft\u00ebsi t\u00eb kufizuara intelektuale kan\u00eb m\u00eb shum\u00eb gjasa t\u00eb zhvillojn\u00eb demenc\u00eb dhe shpesh e b\u00ebjn\u00eb k\u00ebt\u00eb n\u00eb nj\u00eb mosh\u00eb m\u00eb t\u00eb re. Njer\u00ebzit me aft\u00ebsi t\u00eb kufizuara intelektuale dhe Sindrom\u00ebn Daun jan\u00eb n\u00eb rrezik edhe m\u00eb t\u00eb lart\u00eb, me pothuajse dy t\u00eb tretat e tyre t\u00eb ngjar\u00eb t\u00eb zhvillojn\u00eb demenc\u00eb.<\/p>\n

Personat me aft\u00ebsi t\u00eb kufizuara intelektuale shpesh jetojn\u00eb me familjen e tyre p\u00ebr shum\u00eb m\u00eb gjat\u00eb dhe vazhdojn\u00eb t\u00eb mb\u00ebshteten nga familja e tyre edhe pasi largohen nga sht\u00ebpia. Prandaj, demenca ka t\u00eb ngjar\u00eb t\u00eb sjell\u00eb sfida p\u00ebr t\u00eb gjith\u00eb familjen. Shum\u00eb njer\u00ebz me aft\u00ebsi t\u00eb kufizuara intelektuale dhe demenc\u00eb p\u00ebrjetojn\u00eb probleme t\u00eb tilla si agresioni ose gjumi i shqet\u00ebsuar. Kjo mund t\u00eb n\u00ebnkuptoj\u00eb se ata k\u00ebrkojn\u00eb shum\u00eb mb\u00ebshtetje nga sh\u00ebrbimet dhe ndonj\u00ebher\u00eb edhe shtrim n\u00eb spital.<\/p>\n

Shum\u00eb njer\u00ebz me aft\u00ebsi t\u00eb kufizuara intelektuale dhe familjet e tyre do t\u00eb p\u00ebrfitonin nga mb\u00ebshtetja emocionale dhe ndihma p\u00ebr t\u00eb kuptuar diagnoz\u00ebn. Megjithat\u00eb, kjo ofrohet rrall\u00eb. Nuk ka nd\u00ebrhyrje q\u00eb synojn\u00eb mb\u00ebshtetjen e personit dhe familjes s\u00eb tij p\u00ebr t\u00eb folur s\u00eb bashku p\u00ebr k\u00ebt\u00eb.<\/p>\n

Cili \u00ebsht\u00eb q\u00ebllimi i hulumtimit?<\/h2>\n

T\u00eb jetosh mir\u00eb me demenc\u00ebn (LivDem) \u00ebsht\u00eb nj\u00eb qasje e bazuar n\u00eb prova p\u00ebr t\u00eb mb\u00ebshtetur njer\u00ebzit q\u00eb t\u00eb flasin dhe t\u00eb p\u00ebrshtaten pas nj\u00eb diagnoze demence. Grupet LivDem jan\u00eb ofruar n\u00eb t\u00eb gjith\u00eb Mbret\u00ebrin\u00eb e Bashkuar p\u00ebr m\u00eb shum\u00eb se dhjet\u00eb vjet. Koh\u00ebt e fundit, ne kemi zhvilluar nj\u00eb version t\u00eb LivDem p\u00ebr njer\u00ebzit q\u00eb duan t\u00eb flasin me familjen e tyre. Megjithat\u00eb, LivDem aktualisht nuk \u00ebsht\u00eb i p\u00ebrshtatsh\u00ebm p\u00ebr shumic\u00ebn e njer\u00ebzve me aft\u00ebsi t\u00eb kufizuara intelektuale q\u00eb zhvillojn\u00eb demenc\u00eb.<\/p>\n

Ky hulumtim synon t\u00eb p\u00ebrshtat\u00eb programin "T\u00eb jetosh mir\u00eb me demenc\u00eb" (LivDem) p\u00ebr t\u00eb mb\u00ebshtetur njer\u00ebzit me aft\u00ebsi t\u00eb kufizuara intelektuale dhe demenc\u00eb dhe familjet e tyre (LivDem-ID). LivDem-ID do t'u jap\u00eb familjeve mund\u00ebsin\u00eb t\u00eb flasin s\u00eb bashku p\u00ebr at\u00eb q\u00eb po ndodh tani dhe t\u00eb planifikojn\u00eb p\u00ebr t\u00eb ardhmen. LivDem-ID do t\u00eb marr\u00eb n\u00eb konsiderat\u00eb sfidat e ve\u00e7anta me t\u00eb cilat mund t\u00eb p\u00ebrballen njer\u00ebzit me aft\u00ebsi t\u00eb kufizuara intelektuale dhe demenc\u00eb.<\/p>\n

Si do t\u00eb arrihet kjo?<\/h2>\n

Pas zhvillimit t\u00eb nd\u00ebrhyrjes LivDem-ID t\u00eb p\u00ebrfunduar me financim nga RCF, ne do t\u00eb aplikojm\u00eb p\u00ebr financim nga NIHR. Ky projekt i NIHR ka t\u00eb ngjar\u00eb t\u00eb ket\u00eb kat\u00ebr faza:<\/p>\n

1. P\u00ebr t\u00eb filluar t\u00eb shqyrtojm\u00eb n\u00ebse LivDem-ID mund t\u00eb jet\u00eb i dobish\u00ebm, ne do ta shp\u00ebrndajm\u00eb at\u00eb n\u00eb 6 familje ku nj\u00eb person ka aft\u00ebsi t\u00eb kufizuara intelektuale dhe demenc\u00eb.
\n2. Pastaj do t\u00eb krijojm\u00eb nj\u00eb paket\u00eb trajnimi p\u00ebr leht\u00ebsuesit e LivDem-ID.
\n3. Ne do t\u00eb trajnojm\u00eb rreth 25 leht\u00ebsues nga NHS dhe sektori i komunitetit p\u00ebr t\u00eb ofruar LivDem-ID me nj\u00eb num\u00ebr t\u00eb vog\u00ebl familjesh. Kjo do t\u00eb jet\u00eb n\u00eb lloje t\u00eb ndryshme sh\u00ebrbimesh p\u00ebr t\u00eb par\u00eb se ku p\u00ebrshtatet m\u00eb mir\u00eb.
\n4. Ne do t\u00eb vler\u00ebsojm\u00eb n\u00ebse LivDem-ID mund t\u00eb jet\u00eb i dobish\u00ebm dhe kush mund t\u00eb jet\u00eb m\u00eb i miri p\u00ebr ta ofruar at\u00eb.
\nT\u00eb gjitha fazat do t\u00eb mb\u00ebshteten nga grupi yn\u00eb i p\u00ebrfshirjes dhe angazhimit t\u00eb pacient\u00ebve dhe publikut (PPIE), duke p\u00ebrfshir\u00eb personat me aft\u00ebsi t\u00eb kufizuara intelektuale dhe kujdestar\u00ebt familjar\u00eb.<\/p>\n

Kush po e udh\u00ebheq hulumtimin?<\/h2>\n

Ky hulumtim drejtohet nga Dr. Natasha Woodstoke, Psikologe Klinike dhe Bashk\u00ebpun\u00ebtore e K\u00ebrkimit mbi Demenc\u00ebn, Qendra p\u00ebr K\u00ebrkime Klinike dhe Sh\u00ebndet\u00ebsore, Shkolla e Sh\u00ebndetit dhe Mir\u00ebqenies Sociale, Universiteti i Anglis\u00eb Per\u00ebndimore (UWE), Bristol.<\/p>\n

Informacion i m\u00ebtejsh\u00ebm<\/h2>\n

P\u00ebr m\u00eb shum\u00eb informacion ose p\u00ebr t'u p\u00ebrfshir\u00eb n\u00eb k\u00ebt\u00eb projekt, ju lutemi d\u00ebrgoni email\u00a0bnssg.research@nhs.net<\/strong><\/a>.<\/p>\n <\/div>\r\n <\/section><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"

Si mund ta p\u00ebrshtasim programin \u201cT\u00eb jetosh mir\u00eb me demenc\u00eb\u201d (LivDem) p\u00ebr t\u00eb mb\u00ebshtetur njer\u00ebzit me aft\u00ebsi t\u00eb kufizuara intelektuale dhe familjet e tyre pas nj\u00eb diagnoze t\u00eb demenc\u00ebs?<\/p>","protected":false},"author":16,"featured_media":0,"parent":32896,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"tags":[],"class_list":["post-44463","page","type-page","status-publish","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/pages\/44463","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/users\/16"}],"replies":[{"embeddable":true,"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/comments?post=44463"}],"version-history":[{"count":2,"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/pages\/44463\/revisions"}],"predecessor-version":[{"id":44465,"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/pages\/44463\/revisions\/44465"}],"up":[{"embeddable":true,"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/pages\/32896"}],"wp:attachment":[{"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/media?parent=44463"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/tags?post=44463"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}