{"id":14235,"date":"2023-03-02T14:01:16","date_gmt":"2023-03-02T14:01:16","guid":{"rendered":"https:\/\/nhs-icb.bisongrid.dev\/?p=14235"},"modified":"2023-03-02T14:01:16","modified_gmt":"2023-03-02T14:01:16","slug":"app-supports-newly-diagnosed-ird-patients-to-manage-their-symptoms-better","status":"publish","type":"post","link":"https:\/\/bnssghealthiertogether.org.uk\/sq\/news\/app-supports-newly-diagnosed-ird-patients-to-manage-their-symptoms-better\/","title":{"rendered":"Aplikacioni mb\u00ebshtet pacient\u00ebt e diagnostikuar rishtazi me IRD p\u00ebr t\u00eb menaxhuar m\u00eb mir\u00eb simptomat e tyre"},"content":{"rendered":"
Seksioni me titull module-1<\/span><\/a>
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Aplikacioni mb\u00ebshtet pacient\u00ebt e diagnostikuar rishtazi me IRD p\u00ebr t\u00eb menaxhuar m\u00eb mir\u00eb simptomat e tyre<\/h1>\n

Aplikacioni "Living With Arthritis" \u00ebsht\u00eb zhvilluar me klinicist\u00eb nga Trusti i NHS-s\u00eb i Bristolit t\u00eb Veriut<\/a> dhe Spitalet Universitare t\u00eb Bristolit dhe Westonit NHS Foundation Trust<\/a>, studiues nga UWE Bristol<\/a>, grupe pacient\u00ebsh dhe zhvillues aplikacionesh T\u00eb jetosh me<\/a>. Aplikacioni u financua nga Bamir\u00ebsit\u00eb e NHS-s\u00eb s\u00eb bashku<\/a>.<\/p>\n

S\u00ebmundjet reumatike t\u00eb zorr\u00ebve (IRD) prekin kockat dhe nyjet e njer\u00ebzve dhe p\u00ebrfshijn\u00eb s\u00ebmundje t\u00eb tilla si artriti reumatoid, artriti psoriatik dhe spondiliti ankilozant, nd\u00ebr t\u00eb tjera. Rreth 750,000 njer\u00ebz n\u00eb Mbret\u00ebrin\u00eb e Bashkuar preken nga nj\u00eb IRD. Simptomat e IRD-ve p\u00ebrfshijn\u00eb dhimbje dhe lodhje, t\u00eb cilat kufizojn\u00eb aft\u00ebsin\u00eb e njer\u00ebzve p\u00ebr t\u00eb punuar, p\u00ebr t'u ushtruar dhe p\u00ebr t'u socializuar. Ndikimi i k\u00ebtyre simptomave mund t\u00eb p\u00ebrfshij\u00eb humor t\u00eb ul\u00ebt, shqet\u00ebsim dhe ankth.<\/p>\n

Si nj\u00eb gjendje afatgjat\u00eb, ka prova q\u00eb tregojn\u00eb se n\u00ebse pacient\u00ebt ndihen t\u00eb sigurt p\u00ebr menaxhimin e IRD-s\u00eb s\u00eb tyre, ata mund t\u00eb ken\u00eb nevoj\u00eb t\u00eb p\u00ebrdorin m\u00eb pak burime t\u00eb kujdesit sh\u00ebndet\u00ebsor. Ekzistojn\u00eb gjithashtu prova q\u00eb t'u ofrohet njer\u00ebzve m\u00eb shum\u00eb informacion dhe t'u drejtohen burimeve dhe mb\u00ebshtetjes kur diagnostikohen, do t\u00eb thot\u00eb q\u00eb ata mund t\u00eb p\u00ebrjetojn\u00eb m\u00eb pak shqet\u00ebsim psikologjik dhe emocional dhe t\u00eb ndihen m\u00eb t\u00eb aft\u00eb p\u00ebr t'u p\u00ebrballuar dhe n\u00eb kontroll.<\/p>\n

Aplikacioni "Living With Arthritis" ofron informacion mbi IRD-t\u00eb e ndryshme, duke p\u00ebrfshir\u00eb opsionet e trajtimit, udh\u00ebzime p\u00ebr nj\u00eb jetes\u00eb t\u00eb mir\u00eb dhe mjete p\u00ebr menaxhimin e lodhjes. Ai p\u00ebrfshin burime p\u00ebr t\u00eb mb\u00ebshtetur pacient\u00ebt me nevojat e tyre fizike, emocionale dhe praktike, si dhe udh\u00ebzime p\u00ebr burimet lokale dhe komb\u00ebtare, duke p\u00ebrfshir\u00eb Kund\u00ebr artritit<\/a>.<\/p>\n

Nj\u00eb pacient me IRD q\u00eb p\u00ebrdor aplikacionin Living With Arthritis do t\u00eb ket\u00eb qasje n\u00eb t\u00eb nj\u00ebjtin kujdes sh\u00ebndet\u00ebsor si pacient\u00ebt e tjer\u00eb dhe do t\u00eb jet\u00eb ende n\u00eb gjendje t\u00eb kontaktoj\u00eb ekipin e tij klinik n\u00eb t\u00eb nj\u00ebjt\u00ebn m\u00ebnyr\u00eb. Megjithat\u00eb, informacioni n\u00eb aplikacion mund t'u p\u00ebrgjigjet disa prej pyetjeve t\u00eb tyre dhe do t\u00eb thot\u00eb se ata telefonojn\u00eb linj\u00ebn e ndihm\u00ebs s\u00eb infermier\u00ebve ose kontaktojn\u00eb mjekun e tyre t\u00eb familjes m\u00eb rrall\u00eb.<\/p>\n

Pacient\u00ebt po inkurajohen t\u00eb k\u00ebrkojn\u00eb qasje n\u00eb aplikacion nga konsulenti i tyre i spitalit n\u00eb Southmead, Weston ose n\u00eb Spitalin Mbret\u00ebror t\u00eb Bristolit.<\/p>\n

Dr. Emma Dures \u00ebsht\u00eb bashk\u00ebdrejtoresh\u00eb e BBJ HIT dhe Profesoresh\u00eb e Asociuar n\u00eb Reumatologji dhe Vet\u00ebmenaxhim n\u00eb Qendr\u00ebn p\u00ebr Sh\u00ebndet\u00ebsi dhe K\u00ebrkime Klinike, UWE Bristol, e vendosur n\u00eb Spitalet Universitare t\u00eb Bristolit dhe Westonit NHS Foundation Trust<\/a>. Ajo tha:<\/p>\n

\u201cJemi t\u00eb k\u00ebnaqur q\u00eb aplikacioni Living With Arthritis \u00ebsht\u00eb tani i disponuesh\u00ebm p\u00ebr pacient\u00ebt n\u00eb rajon, sepse e dim\u00eb q\u00eb n\u00ebse njer\u00ebzit mb\u00ebshteten p\u00ebr t\u00eb vet\u00eb-menaxhuar simptomat e tyre dhe ndikimin e gjendjes s\u00eb tyre q\u00eb n\u00eb fillim, kjo mund t\u00eb jet\u00eb e dobishme p\u00ebr vite me radh\u00eb.\u201d<\/p>\n

\u201c"Dua t\u00eb fal\u00ebnderoj t\u00eb gjith\u00eb ata q\u00eb kan\u00eb qen\u00eb t\u00eb p\u00ebrfshir\u00eb n\u00eb mbledhjen e informacionit dhe shqyrtimin e aplikacionit, ve\u00e7an\u00ebrisht partner\u00ebt tan\u00eb t\u00eb pacient\u00ebve, p\u00ebrvoja e t\u00eb cil\u00ebve ka qen\u00eb e pa\u00e7muar."\u201d<\/p>\n

Pacient\u00ebt po inkurajohen t\u00eb k\u00ebrkojn\u00eb qasje n\u00eb aplikacion nga konsulenti i tyre i spitalit n\u00eb Southmead, Weston ose n\u00eb Spitalin Mbret\u00ebror t\u00eb Bristolit.\u201d<\/p><\/blockquote>\n

Dr. Emma Dures \u00ebsht\u00eb bashk\u00ebdrejtoresh\u00eb e BBJ HIT dhe Profesoresh\u00eb e Asociuar n\u00eb Reumatologji dhe Vet\u00ebmenaxhim n\u00eb Qendr\u00ebn p\u00ebr Sh\u00ebndet\u00ebsi dhe K\u00ebrkime Klinike, UWE Bristol, e vendosur bashk\u00eb me Spitalet Universitare t\u00eb Bristolit dhe Weston NHS Foundation Trust. Ajo tha:<\/p>\n

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\u201cJemi t\u00eb k\u00ebnaqur q\u00eb aplikacioni Living With Arthritis \u00ebsht\u00eb tani i disponuesh\u00ebm p\u00ebr pacient\u00ebt n\u00eb rajon, sepse e dim\u00eb q\u00eb n\u00ebse njer\u00ebzit mb\u00ebshteten p\u00ebr t\u00eb vet\u00eb-menaxhuar simptomat e tyre dhe ndikimin e gjendjes s\u00eb tyre q\u00eb n\u00eb fillim, kjo mund t\u00eb jet\u00eb e dobishme p\u00ebr vite me radh\u00eb.\u201d<\/p>\n

\u201c"Dua t\u00eb fal\u00ebnderoj t\u00eb gjith\u00eb ata q\u00eb kan\u00eb qen\u00eb t\u00eb p\u00ebrfshir\u00eb n\u00eb mbledhjen e informacionit dhe shqyrtimin e aplikacionit, ve\u00e7an\u00ebrisht partner\u00ebt tan\u00eb t\u00eb pacient\u00ebve, p\u00ebrvoja e t\u00eb cil\u00ebve ka qen\u00eb e pa\u00e7muar."\u201d<\/p><\/blockquote>\n<\/blockquote>\n

Julie, nj\u00eb nga pacientet q\u00eb mori pjes\u00eb n\u00eb grupet e fokusit p\u00ebr t\u00eb ndihmuar n\u00eb zhvillimin e aplikacionit, tha:<\/p>\n

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\u201cE kam p\u00ebrdorur aplikacionin Living With dhe e kam gjetur v\u00ebrtet t\u00eb dobish\u00ebm dhe informues. M\u00eb ofron shum\u00eb k\u00ebshilla dhe informacione t\u00eb mira e t\u00eb qarta jo vet\u00ebm rreth gjendjes sime inflamatore, por edhe se si t\u00eb p\u00ebrballoj efektet an\u00ebsore q\u00eb kjo gjendje ka n\u00eb pjes\u00ebn tjet\u00ebr t\u00eb jet\u00ebs sime. Ky aplikacion i leht\u00eb p\u00ebr t\u2019u p\u00ebrdorur \u00ebsht\u00eb b\u00ebr\u00eb aplikacioni im i preferuar p\u00ebr informacion t\u00eb besuesh\u00ebm, nga efektet an\u00ebsore t\u00eb ila\u00e7eve te mir\u00ebqenia, p\u00ebrshtatjet sht\u00ebpiake e deri te mb\u00ebshtetja p\u00ebr udh\u00ebtime. E p\u00ebrdor rregullisht dhe patjet\u00ebr do t\u00eb vazhdoj ta p\u00ebrdor edhe n\u00eb t\u00eb ardhmen.\u201d<\/p><\/blockquote>\n<\/blockquote>\n <\/div>\r\n

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Ndani:<\/p>

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Bristol Bones and Joints (BBJ) HIT ka zhvilluar nj\u00eb aplikacion p\u00ebr t\u00eb ndihmuar njer\u00ebzit e diagnostikuar rishtazi me nj\u00eb s\u00ebmundje reumatike inflamatore (IRD) t\u00eb m\u00ebsojn\u00eb rreth gjendjes s\u00eb tyre dhe t\u00eb menaxhojn\u00eb efektet q\u00eb ajo ka n\u00eb jet\u00ebn e tyre.<\/p>","protected":false},"author":16,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[23,287],"tags":[786,787],"class_list":["post-14235","post","type-post","status-publish","format-standard","hentry","category-health-services","category-local-service-information","tag-mobile-app-technology","tag-nhs-partners"],"acf":[],"_links":{"self":[{"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/posts\/14235","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/users\/16"}],"replies":[{"embeddable":true,"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/comments?post=14235"}],"version-history":[{"count":0,"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/posts\/14235\/revisions"}],"wp:attachment":[{"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/media?parent=14235"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/categories?post=14235"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/bnssghealthiertogether.org.uk\/sq\/wp-json\/wp\/v2\/tags?post=14235"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}