{"id":34647,"date":"2024-11-26T17:05:54","date_gmt":"2024-11-26T17:05:54","guid":{"rendered":"https:\/\/bnssghealthiertogether.org.uk\/?page_id=34647"},"modified":"2024-11-26T17:05:54","modified_gmt":"2024-11-26T17:05:54","slug":"how-can-we-identify-and-support-children-with-life-limiting-conditions-with-complex-polypharmacy-the-polypill-project","status":"publish","type":"page","link":"https:\/\/bnssghealthiertogether.org.uk\/tr\/integrated-care-board\/research-and-evidence\/our-research-portfolio\/type-2-rcf-funded-projects\/how-can-we-identify-and-support-children-with-life-limiting-conditions-with-complex-polypharmacy-the-polypill-project\/","title":{"rendered":"Ya\u015fam\u0131 s\u0131n\u0131rlayan rahats\u0131zl\u0131klar\u0131 olan ve karma\u015f\u0131k \u00e7oklu ila\u00e7 tedavisi g\u00f6ren \u00e7ocuklar\u0131 nas\u0131l tespit edip destekleyebiliriz? \u2013 PolyPiLL projesi"},"content":{"rendered":"
Mod\u00fcl-1 ba\u015fl\u0131kl\u0131 b\u00f6l\u00fcm<\/span><\/a>
\r\n
\r\n

Ya\u015fam\u0131 s\u0131n\u0131rlayan rahats\u0131zl\u0131klar\u0131 olan ve karma\u015f\u0131k \u00e7oklu ila\u00e7 tedavisi g\u00f6ren \u00e7ocuklar\u0131 nas\u0131l tespit edip destekleyebiliriz? \u2013 PolyPiLL projesi<\/h1>\n

Finansman<\/h2>\n

BNSSG ICB Ara\u015ft\u0131rma Kapasitesi Geli\u015ftirme Fonu.<\/p>\n

Ara\u015ft\u0131rma sorusu nedir?<\/h2>\n

Ya\u015fam\u0131 s\u0131n\u0131rlayan rahats\u0131zl\u0131klar\u0131 olan ve karma\u015f\u0131k \u00e7oklu ila\u00e7 tedavisi g\u00f6ren \u00e7ocuklar\u0131 nas\u0131l tespit edip destekleyebiliriz?<\/p>\n

Sorun nedir?<\/h2>\n

Karma\u015f\u0131k ihtiya\u00e7lar\u0131 olan veya ya\u015fam\u0131 s\u0131n\u0131rlayan rahats\u0131zl\u0131klar\u0131 bulunan bir\u00e7ok \u00e7ocuk, genellikle uzun s\u00fcreler boyunca birden fazla ilaca (polifarmasi) ihtiya\u00e7 duyar ve bu durum hasta g\u00fcvenli\u011fi konusunda endi\u015felere yol a\u00e7ar. Ebeveynler\/bak\u0131c\u0131lar, genellikle karma\u015f\u0131k bir ila\u00e7 uygulama rejimini koordine etmek ve \u00e7e\u015fitli ortamlardaki birden fazla sa\u011fl\u0131k uzman\u0131yla kapsaml\u0131 ileti\u015fim kurmak zorunda kal\u0131rlar; bu da zamanlar\u0131na olan talebi art\u0131r\u0131r. \u0130la\u00e7 re\u00e7eteleme ve temini, az say\u0131da ortak denetimle, birka\u00e7 ayr\u0131 sa\u011fl\u0131k hizmeti sa\u011flay\u0131c\u0131s\u0131n\u0131n (aile hekimleri, \u00e7ocuk uzmanlar\u0131, toplum veya hastane eczaneleri) sorumlulu\u011funda olabilir.<\/p>\n

\u00c7oklu ila\u00e7 kullan\u0131m\u0131yla ilgili ulusal ve uluslararas\u0131 giri\u015fimler, herkes i\u00e7in ila\u00e7 y\u00f6netiminin g\u00fcvenli\u011fini art\u0131rmay\u0131 ama\u00e7lamaktad\u0131r. \u00c7oklu ila\u00e7 kullan\u0131m\u0131 ve bunun hastalar ve sa\u011fl\u0131k \u00e7al\u0131\u015fanlar\u0131 i\u00e7in yaratt\u0131\u011f\u0131 sorunlar yeti\u015fkin hastalar i\u00e7in ara\u015ft\u0131rma ve iyile\u015ftirme giri\u015fimlerinin odak noktas\u0131 olsa da, ya\u015fam\u0131 s\u0131n\u0131rlayan rahats\u0131zl\u0131klar\u0131 olan \u00e7ocuklar, aileleri\/bak\u0131c\u0131lar\u0131 \u00fczerindeki \u00e7oklu ila\u00e7 kullan\u0131m\u0131n\u0131n etkisi veya onlara en iyi nas\u0131l destek olunaca\u011f\u0131 hakk\u0131nda \u00e7ok az \u015fey bilinmektedir.<\/p>\n

Ara\u015ft\u0131rman\u0131n amac\u0131 nedir?<\/h2>\n

Bu ara\u015ft\u0131rma, ya\u015fam\u0131 s\u0131n\u0131rlayan rahats\u0131zl\u0131klar\u0131 olan \u00e7ocuk ve gen\u00e7lerde \u00e7oklu ila\u00e7 kullan\u0131m\u0131n\u0131n ortaya \u00e7\u0131kard\u0131\u011f\u0131 sorunlara ili\u015fkin anlay\u0131\u015f\u0131m\u0131z\u0131 geli\u015ftirecektir. Bir\u00e7ok durumda, ya\u015fam\u0131 s\u0131n\u0131rlayan rahats\u0131zl\u0131klar\u0131 olan \u00e7ocuklar birden fazla ilaca ihtiya\u00e7 duymaktan ka\u00e7\u0131namazlar; bu nedenle bu ara\u015ft\u0131rman\u0131n amac\u0131, hastaya gereksiz zarar\u0131 en aza indirmenin ve ebeveynler\/bak\u0131c\u0131lar i\u00e7in ila\u00e7 y\u00f6netimi s\u00fcrecini basitle\u015ftirmenin yollar\u0131n\u0131 ara\u015ft\u0131rmakt\u0131r. Hasta ve aile deneyimine dair bu anlay\u0131\u015f, klinik meslekta\u015flardan gelen katk\u0131larla birle\u015ferek, karma\u015f\u0131k veya sorunlu \u00e7oklu ila\u00e7 kullan\u0131m\u0131 olan ki\u015fileri ki\u015fiye \u00f6zel bir \u015fekilde belirleme ve destekleme s\u00fcrecinin geli\u015ftirilmesine katk\u0131da bulunacakt\u0131r.<\/p>\n

Bu RCF-2 fonlama ba\u015fvurusunun kapsam\u0131 d\u0131\u015f\u0131nda olsa da, bu yakla\u015f\u0131m nihayetinde, hasta g\u00fcvenli\u011fini art\u0131rmak ve evde \u00e7ocuklar\u0131 ve aileleri desteklemek i\u00e7in uzman eczac\u0131 veya klinik deste\u011finin en \u00e7ok ihtiya\u00e7 duyanlara y\u00f6nlendirilmesini ve bir m\u00fcdahalenin sonu\u00e7lar\u0131n\u0131n \u00f6l\u00e7\u00fclebilir olmas\u0131n\u0131 sa\u011flayacakt\u0131r. Bu uzman, hedefli m\u00fcdahalelerin de\u011ferlendirilmesi, zaman\u0131 geldi\u011finde NIHR RfPB fonlamas\u0131 i\u00e7in yap\u0131lacak bir ba\u015fvurunun konusu olacakt\u0131r.<\/p>\n

Bu nas\u0131l ba\u015far\u0131lacak?<\/h2>\n

Bu \u00e7al\u0131\u015fma \u00fc\u00e7 a\u015famadan olu\u015facak olup, ilk a\u015famada karma\u015f\u0131k \u00e7oklu ila\u00e7 kullan\u0131m\u0131n\u0131n belirlenmesine ve hasta riskini ve bak\u0131m verenlerin y\u00fck\u00fcn\u00fc en aza indirmeye y\u00f6nelik m\u00fcdahalelere odaklanacak bir literat\u00fcr taramas\u0131 yap\u0131lacakt\u0131r.<\/p>\n

\u0130kinci a\u015famada, \u00e7ocuklarla\/gen\u00e7lerle ve ebeveynleriyle yap\u0131lacak g\u00f6r\u00fc\u015fmeler, ila\u00e7lar\u0131n\u0131 y\u00f6netme konusundaki ihtiya\u00e7lar\u0131 ve endi\u015feleri hakk\u0131nda nitel veriler sa\u011flayacakt\u0131r. Bu, klinik personel (\u00e7ocuk doktorlar\u0131, hem\u015fireler, eczac\u0131lar) ile yap\u0131lacak g\u00f6r\u00fc\u015fmelerle desteklenecek ve bu g\u00f6r\u00fc\u015fmelerde karma\u015f\u0131k veya sorunlu \u00e7oklu ila\u00e7 kullan\u0131m\u0131n\u0131 nas\u0131l tespit ettikleri ve aileler i\u00e7in ek deste\u011fe ihtiya\u00e7 duyuldu\u011funu g\u00f6steren i\u015faretlerin neler oldu\u011fu ele al\u0131nacakt\u0131r.<\/p>\n

\u00dc\u00e7\u00fcnc\u00fc a\u015famada, 1. ve 2. a\u015famalardan elde edilen bulgular, payda\u015flarla bir konsensus etkinli\u011finde payla\u015f\u0131lacakt\u0131r. Payda\u015flar aras\u0131nda hastalar ve aileleri, \u00e7e\u015fitli alanlardan ve ge\u00e7mi\u015flerden gelen klinisyenler ve yetkililer yer alacakt\u0131r. Bu etkinli\u011fin sonu\u00e7lar\u0131, karma\u015f\u0131k veya sorunlu \u00e7oklu ila\u00e7 kullan\u0131m\u0131n\u0131 belirlemek i\u00e7in bir arac\u0131n ortakla\u015fa olu\u015fturulmas\u0131na ve g\u00fcvenli, verimli ve etkili ila\u00e7 y\u00f6netimini iyile\u015ftirmek i\u00e7in profesyonel destek \u00f6nerilerine yol a\u00e7acakt\u0131r.<\/p>\n

Ara\u015ft\u0131rmay\u0131 kim y\u00fcr\u00fct\u00fcyor?<\/h2>\n

Dr. Nicky Harris, Ara\u015ft\u0131rma G\u00f6revlisi, Sa\u011fl\u0131k ve Klinik Ara\u015ft\u0131rma Merkezi, UWE<\/p>\n

Daha fazla bilgi:<\/h2>\n

Daha fazla bilgi almak veya bu projeye dahil olmak i\u00e7in l\u00fctfen bnssg.research@nhs.net adresinden ileti\u015fime ge\u00e7in.<\/p>\n <\/div>\r\n <\/section><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"

Section titled module-1 How can we identify and support children with life-limiting conditions with complex polypharmacy? \u2013 the PolyPiLL project Funding BNSSG ICB Research Capability Funding. What is the research question? How can we identify and support children with life-limiting conditions with complex polypharmacy? What is the problem? Many children with complex needs or life-limiting […]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":32896,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"tags":[],"class_list":["post-34647","page","type-page","status-publish","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/bnssghealthiertogether.org.uk\/tr\/wp-json\/wp\/v2\/pages\/34647","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/bnssghealthiertogether.org.uk\/tr\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/bnssghealthiertogether.org.uk\/tr\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/bnssghealthiertogether.org.uk\/tr\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/bnssghealthiertogether.org.uk\/tr\/wp-json\/wp\/v2\/comments?post=34647"}],"version-history":[{"count":2,"href":"https:\/\/bnssghealthiertogether.org.uk\/tr\/wp-json\/wp\/v2\/pages\/34647\/revisions"}],"predecessor-version":[{"id":34649,"href":"https:\/\/bnssghealthiertogether.org.uk\/tr\/wp-json\/wp\/v2\/pages\/34647\/revisions\/34649"}],"up":[{"embeddable":true,"href":"https:\/\/bnssghealthiertogether.org.uk\/tr\/wp-json\/wp\/v2\/pages\/32896"}],"wp:attachment":[{"href":"https:\/\/bnssghealthiertogether.org.uk\/tr\/wp-json\/wp\/v2\/media?parent=34647"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/bnssghealthiertogether.org.uk\/tr\/wp-json\/wp\/v2\/tags?post=34647"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}