{"id":44463,"date":"2025-11-14T13:52:56","date_gmt":"2025-11-14T13:52:56","guid":{"rendered":"https:\/\/bnssghealthiertogether.org.uk\/?page_id=44463"},"modified":"2025-11-14T13:52:56","modified_gmt":"2025-11-14T13:52:56","slug":"supporting-people-with-intellectual-disabilities-and-their-families-following-a-diagnosis-of-dementia-adapting-the-living-well-with-dementia-livdem-approach","status":"publish","type":"page","link":"https:\/\/bnssghealthiertogether.org.uk\/tr\/integrated-care-board\/research-and-evidence\/our-research-portfolio\/type-2-rcf-funded-projects\/supporting-people-with-intellectual-disabilities-and-their-families-following-a-diagnosis-of-dementia-adapting-the-living-well-with-dementia-livdem-approach\/","title":{"rendered":"Demans tan\u0131s\u0131 konulduktan sonra zihinsel engelli bireylere ve ailelerine destek: Demansla \u0130yi Ya\u015fam (LivDem) yakla\u015f\u0131m\u0131n\u0131n uyarlanmas\u0131."},"content":{"rendered":"
Mod\u00fcl-1 ba\u015fl\u0131kl\u0131 b\u00f6l\u00fcm<\/span><\/a>
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Demans tan\u0131s\u0131 konulduktan sonra zihinsel engelli bireylere ve ailelerine destek: Demansla \u0130yi Ya\u015fam (LivDem) yakla\u015f\u0131m\u0131n\u0131n uyarlanmas\u0131.<\/h1>\n

 <\/p>\n

Finansman<\/h2>\n

NHS Bristol, North Somerset ve South Gloucestershire ICB Ara\u015ft\u0131rma Kapasitesi Fonu.<\/p>\n

Ara\u015ft\u0131rma sorusu nedir?<\/h2>\n

Demansla \u0130yi Ya\u015fam (LivDem) program\u0131n\u0131, demans te\u015fhisi konulduktan sonra zihinsel engelli bireyleri ve ailelerini desteklemek i\u00e7in nas\u0131l uyarlayabiliriz?<\/p>\n

Sorun nedir?<\/h2>\n

Zihinsel engelli ki\u015filerde demans geli\u015fme olas\u0131l\u0131\u011f\u0131 daha y\u00fcksektir ve genellikle daha gen\u00e7 ya\u015fta ortaya \u00e7\u0131kar. Zihinsel engelli ve Down sendromlu ki\u015filerde ise risk daha da y\u00fcksektir; neredeyse \u00fc\u00e7te ikisinde demans geli\u015fme olas\u0131l\u0131\u011f\u0131 vard\u0131r.<\/p>\n

Zihinsel engelli ki\u015filer genellikle aileleriyle \u00e7ok daha uzun s\u00fcre birlikte ya\u015farlar ve evden ayr\u0131ld\u0131ktan sonra da aileleri taraf\u0131ndan desteklenmeye devam ederler. Bu nedenle, demans t\u00fcm aile i\u00e7in zorluklar getirebilir. Zihinsel engelli ve demansl\u0131 bir\u00e7ok ki\u015fi sald\u0131rganl\u0131k veya uyku bozuklu\u011fu gibi sorunlar ya\u015far. Bu, hizmetlerden \u00e7ok fazla destek almalar\u0131 ve hatta bazen hastaneye yat\u0131r\u0131lmalar\u0131 gerekti\u011fi anlam\u0131na gelebilir.<\/p>\n

Zihinsel engelli bir\u00e7ok ki\u015fi ve aileleri, duygusal destekten ve te\u015fhisi anlamalar\u0131na yard\u0131mc\u0131 olacak destekten fayda g\u00f6r\u00fcr. Ancak bu destek nadiren sa\u011flanmaktad\u0131r. Ki\u015finin ve ailesinin bu konuda birlikte konu\u015fmas\u0131n\u0131 desteklemeyi ama\u00e7layan hi\u00e7bir m\u00fcdahale bulunmamaktad\u0131r.<\/p>\n

Ara\u015ft\u0131rman\u0131n amac\u0131 nedir?<\/h2>\n

Demansla \u0130yi Ya\u015fam (LivDem), demans tan\u0131s\u0131 konulduktan sonra ki\u015filerin konu\u015fmas\u0131na ve uyum sa\u011flamas\u0131na destek olmak i\u00e7in kan\u0131ta dayal\u0131 bir yakla\u015f\u0131md\u0131r. LivDem gruplar\u0131 on y\u0131l\u0131 a\u015fk\u0131n s\u00fcredir Birle\u015fik Krall\u0131k genelinde uygulanmaktad\u0131r. Son zamanlarda, aileleriyle konu\u015fmak isteyen ki\u015filer i\u00e7in bir LivDem versiyonu geli\u015ftirdik. Bununla birlikte, LivDem \u015fu anda demans geli\u015ftiren zihinsel engelli ki\u015filerin \u00e7o\u011fu i\u00e7in uygun de\u011fildir.<\/p>\n

Bu ara\u015ft\u0131rma, zihinsel engelli ve demansl\u0131 bireyleri ve ailelerini desteklemek amac\u0131yla Ya\u015fam\u0131 \u0130yile\u015ftirme (LivDem) program\u0131n\u0131 uyarlamay\u0131 (LivDem-ID) ama\u00e7lamaktad\u0131r. LivDem-ID, ailelere mevcut durum hakk\u0131nda birlikte konu\u015fma ve gelecek i\u00e7in plan yapma f\u0131rsat\u0131 verecektir. LivDem-ID, zihinsel engelli ve demansl\u0131 bireylerin kar\u015f\u0131la\u015fabilece\u011fi \u00f6zel zorluklar\u0131 dikkate alacakt\u0131r.<\/p>\n

Bu nas\u0131l ba\u015far\u0131lacak?<\/h2>\n

RCF fonuyla tamamlanan LivDem-ID m\u00fcdahalesinin geli\u015ftirilmesinin ard\u0131ndan, NIHR fonuna ba\u015fvuraca\u011f\u0131z. Bu NIHR projesinin d\u00f6rt a\u015famadan olu\u015fmas\u0131 muhtemeldir:<\/p>\n

1. LivDem-ID'nin faydal\u0131 olup olmad\u0131\u011f\u0131n\u0131 ara\u015ft\u0131rmaya ba\u015flamak i\u00e7in, zihinsel engelli ve demans hastas\u0131 bir bireyin bulundu\u011fu 6 aileye bu program\u0131 uygulayaca\u011f\u0131z.
\n2. Ard\u0131ndan LivDem-ID kolayla\u015ft\u0131r\u0131c\u0131lar\u0131 i\u00e7in bir e\u011fitim paketi olu\u015fturaca\u011f\u0131z.
\n3. NHS ve toplum sekt\u00f6r\u00fcnden yakla\u015f\u0131k 25 kolayla\u015ft\u0131r\u0131c\u0131y\u0131, az say\u0131da aileyle LivDem-ID program\u0131n\u0131 uygulamak \u00fczere e\u011fitece\u011fiz. Bu, program\u0131n en iyi nerede uygulanabilece\u011fini g\u00f6rmek i\u00e7in farkl\u0131 hizmet t\u00fcrlerinde ger\u00e7ekle\u015ftirilecektir.
\n4. LivDem-ID'nin faydal\u0131 olup olmayaca\u011f\u0131n\u0131 ve bunu kimin en iyi \u015fekilde sunabilece\u011fini de\u011ferlendirece\u011fiz.
\nT\u00fcm a\u015famalar, zihinsel engelli bireyler ve aile bak\u0131c\u0131lar\u0131 da dahil olmak \u00fczere hasta ve kamu kat\u0131l\u0131m\u0131 ve etkile\u015fim grubumuz (PPIE) taraf\u0131ndan desteklenecektir.<\/p>\n

Ara\u015ft\u0131rmay\u0131 kim y\u00fcr\u00fct\u00fcyor?<\/h2>\n

Bu ara\u015ft\u0131rma, Bat\u0131 \u0130ngiltere \u00dcniversitesi (UWE), Bristol, Sa\u011fl\u0131k ve Sosyal Refah Okulu, Klinik ve Sa\u011fl\u0131k Ara\u015ft\u0131rma Merkezi'nde g\u00f6revli Klinik Psikolog ve Demans Ara\u015ft\u0131rma G\u00f6revlisi Dr. Natasha Woodstoke taraf\u0131ndan y\u00fcr\u00fct\u00fclmektedir.<\/p>\n

Daha fazla bilgi<\/h2>\n

Daha fazla bilgi almak veya bu projeye dahil olmak i\u00e7in l\u00fctfen e-posta g\u00f6nderin.\u00a0bnssg.research@nhs.net<\/strong><\/a>.<\/p>\n <\/div>\r\n <\/section><\/div><\/div><\/div>","protected":false},"excerpt":{"rendered":"

Demansla \u0130yi Ya\u015fam (LivDem) program\u0131n\u0131, demans te\u015fhisi konulduktan sonra zihinsel engelli bireyleri ve ailelerini desteklemek i\u00e7in nas\u0131l uyarlayabiliriz?<\/p>","protected":false},"author":16,"featured_media":0,"parent":32896,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"tags":[],"class_list":["post-44463","page","type-page","status-publish","hentry"],"acf":[],"_links":{"self":[{"href":"https:\/\/bnssghealthiertogether.org.uk\/tr\/wp-json\/wp\/v2\/pages\/44463","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/bnssghealthiertogether.org.uk\/tr\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/bnssghealthiertogether.org.uk\/tr\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/bnssghealthiertogether.org.uk\/tr\/wp-json\/wp\/v2\/users\/16"}],"replies":[{"embeddable":true,"href":"https:\/\/bnssghealthiertogether.org.uk\/tr\/wp-json\/wp\/v2\/comments?post=44463"}],"version-history":[{"count":2,"href":"https:\/\/bnssghealthiertogether.org.uk\/tr\/wp-json\/wp\/v2\/pages\/44463\/revisions"}],"predecessor-version":[{"id":44465,"href":"https:\/\/bnssghealthiertogether.org.uk\/tr\/wp-json\/wp\/v2\/pages\/44463\/revisions\/44465"}],"up":[{"embeddable":true,"href":"https:\/\/bnssghealthiertogether.org.uk\/tr\/wp-json\/wp\/v2\/pages\/32896"}],"wp:attachment":[{"href":"https:\/\/bnssghealthiertogether.org.uk\/tr\/wp-json\/wp\/v2\/media?parent=44463"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/bnssghealthiertogether.org.uk\/tr\/wp-json\/wp\/v2\/tags?post=44463"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}