{"id":14235,"date":"2023-03-02T14:01:16","date_gmt":"2023-03-02T14:01:16","guid":{"rendered":"https:\/\/nhs-icb.bisongrid.dev\/?p=14235"},"modified":"2023-03-02T14:01:16","modified_gmt":"2023-03-02T14:01:16","slug":"app-supports-newly-diagnosed-ird-patients-to-manage-their-symptoms-better","status":"publish","type":"post","link":"https:\/\/bnssghealthiertogether.org.uk\/zh\/news\/app-supports-newly-diagnosed-ird-patients-to-manage-their-symptoms-better\/","title":{"rendered":"\u8be5\u5e94\u7528\u7a0b\u5e8f\u65e8\u5728\u5e2e\u52a9\u65b0\u786e\u8bca\u7684\u9057\u4f20\u6027\u89c6\u7f51\u819c\u75be\u75c5\u60a3\u8005\u66f4\u597d\u5730\u7ba1\u7406\u75c7\u72b6\u3002"},"content":{"rendered":"<div class=\"assembler_default-group assembler_module_group assembler_default-group_1 assembler_module_group_1\"><div class=\"assembler_module_area assembler_module_area_1\"><div class=\"assembler_text-module assembler_module assembler_text-module_1 assembler_module_1  transparent\"><a tabindex=\"-1\" title=\"\u6a21\u5757-1\" id=\"module-1\" href=\"https:\/\/bnssghealthiertogether.org.uk\/zh\/wp-json\/wp\/v2\/posts\/14235\/#module-1\" class=\"anchor\"><span class=\"hidden\">\u6a21\u5757-1<\/span><\/a><!-- Template found for text-module - Template: template-text - Matched: _only --><section class=\"w-full mx-auto max-w-content pt-12 sm:pt-24 pb-12 sm:pb-24\">\r\n  <div class=\"entry-content w-full !px-0 max-w-small\">\r\n        <h1>\u8be5\u5e94\u7528\u7a0b\u5e8f\u65e8\u5728\u5e2e\u52a9\u65b0\u786e\u8bca\u7684\u9057\u4f20\u6027\u89c6\u7f51\u819c\u75be\u75c5\u60a3\u8005\u66f4\u597d\u5730\u7ba1\u7406\u75c7\u72b6\u3002<\/h1>\n<time class=\"post_date_shortcode\">2023 \u5e74 3 \u6708<\/time>\n<p>&nbsp;<\/p>\n<p>\u5e03\u91cc\u65af\u6258\u5c14\u9aa8\u79d1\u548c\u5173\u8282 (BBJ) HIT \u5f00\u53d1\u4e86\u4e00\u6b3e\u5e94\u7528\u7a0b\u5e8f\uff0c\u65e8\u5728\u5e2e\u52a9\u65b0\u786e\u8bca\u60a3\u6709\u708e\u75c7\u6027\u98ce\u6e7f\u75c5 (IRD) \u7684\u4eba\u4e86\u89e3\u4ed6\u4eec\u7684\u75c5\u60c5\u5e76\u7ba1\u7406\u5176\u5bf9\u751f\u6d3b\u7684\u5f71\u54cd\u3002.<\/p>\n<p>\u300a\u4e0e\u5173\u8282\u708e\u5171\u5b58\u300b\u5e94\u7528\u7a0b\u5e8f\u662f\u7531\u4e34\u5e8a\u533b\u751f\u5171\u540c\u5f00\u53d1\u7684\u3002 <a href=\"https:\/\/www.nbt.nhs.uk\/\" rel=\"noopener\">\u5317\u5e03\u91cc\u65af\u6258\u5c14 NHS \u4fe1\u6258\u57fa\u91d1\u4f1a<\/a> \u548c <a href=\"https:\/\/www.uhbw.nhs.uk\/\" rel=\"noopener\">\u5e03\u91cc\u65af\u6258\u5c14\u548c\u97e6\u65af\u987f\u5927\u5b66\u533b\u9662 NHS \u57fa\u91d1\u4f1a\u4fe1\u6258\u57fa\u91d1<\/a>, \u6765\u81ea <a href=\"https:\/\/www.uwe.ac.uk\/\" rel=\"noopener\">\u897f\u82f1\u683c\u5170\u5927\u5b66\u5e03\u91cc\u65af\u6258\u5206\u6821<\/a>, \u60a3\u8005\u56e2\u4f53\u548c\u5e94\u7528\u7a0b\u5e8f\u5f00\u53d1\u5546 <a href=\"https:\/\/livingwith.health\/\" rel=\"noopener\">\u4e0e\u2026\u2026\u540c\u4f4f<\/a>. \u8be5\u5e94\u7528\u7a0b\u5e8f\u7531\u2026\u2026\u8d44\u52a9 <a href=\"https:\/\/nhscharitiestogether.co.uk\/\" rel=\"noopener\">\u82f1\u56fd\u56fd\u5bb6\u533b\u7597\u670d\u52a1\u4f53\u7cfb\u6148\u5584\u673a\u6784\u8054\u5408\u4f1a<\/a>.<\/p>\n<p>\u9057\u4f20\u6027\u98ce\u6e7f\u75c5\uff08IRD\uff09\u4f1a\u5f71\u54cd\u4eba\u7684\u9aa8\u9abc\u548c\u5173\u8282\uff0c\u5305\u62ec\u7c7b\u98ce\u6e7f\u6027\u5173\u8282\u708e\u3001\u94f6\u5c51\u75c5\u5173\u8282\u708e\u548c\u5f3a\u76f4\u6027\u810a\u67f1\u708e\u7b49\u75be\u75c5\u3002\u82f1\u56fd\u7ea6\u670975\u4e07\u4eba\u60a3\u6709\u9057\u4f20\u6027\u98ce\u6e7f\u75c5\u3002\u9057\u4f20\u6027\u98ce\u6e7f\u75c5\u7684\u75c7\u72b6\u5305\u62ec\u75bc\u75db\u548c\u75b2\u52b3\uff0c\u8fd9\u4f1a\u9650\u5236\u60a3\u8005\u7684\u5de5\u4f5c\u3001\u8fd0\u52a8\u548c\u793e\u4ea4\u80fd\u529b\u3002\u8fd9\u4e9b\u75c7\u72b6\u8fd8\u4f1a\u5bfc\u81f4\u60c5\u7eea\u4f4e\u843d\u3001\u62c5\u5fe7\u548c\u7126\u8651\u7b49\u95ee\u9898\u3002.<\/p>\n<p>\u4f5c\u4e3a\u4e00\u79cd\u957f\u671f\u75be\u75c5\uff0c\u6709\u8bc1\u636e\u8868\u660e\uff0c\u5982\u679c\u60a3\u8005\u5bf9\u81ea\u8eab\u514d\u75ab\u6027\u98ce\u6e7f\u75c5\uff08IRD\uff09\u7684\u7ba1\u7406\u5145\u6ee1\u4fe1\u5fc3\uff0c\u4ed6\u4eec\u53ef\u80fd\u9700\u8981\u66f4\u5c11\u7684\u533b\u7597\u8d44\u6e90\u3002\u6b64\u5916\uff0c\u4e5f\u6709\u8bc1\u636e\u8868\u660e\uff0c\u5728\u60a3\u8005\u786e\u8bca\u65f6\u63d0\u4f9b\u66f4\u591a\u4fe1\u606f\uff0c\u5e76\u6307\u5f15\u4ed6\u4eec\u83b7\u53d6\u8d44\u6e90\u548c\u652f\u6301\uff0c\u53ef\u4ee5\u51cf\u8f7b\u4ed6\u4eec\u7684\u5fc3\u7406\u548c\u60c5\u7eea\u56f0\u6270\uff0c\u589e\u5f3a\u4ed6\u4eec\u7684\u5e94\u5bf9\u80fd\u529b\u548c\u638c\u63a7\u611f\u3002.<\/p>\n<p>\u201c\u4e0e\u5173\u8282\u708e\u5171\u5b58\u201d\u5e94\u7528\u7a0b\u5e8f\u63d0\u4f9b\u6709\u5173\u4e0d\u540c\u9057\u4f20\u6027\u98ce\u6e7f\u75c5\u7684\u4fe1\u606f\uff0c\u5305\u62ec\u6cbb\u7597\u65b9\u6848\u3001\u5065\u5eb7\u751f\u6d3b\u6307\u5357\u548c\u75b2\u52b3\u7ba1\u7406\u5de5\u5177\u3002\u5b83\u5305\u542b\u652f\u6301\u60a3\u8005\u6ee1\u8db3\u5176\u751f\u7406\u3001\u60c5\u611f\u548c\u5b9e\u9645\u9700\u6c42\u7684\u8d44\u6e90\uff0c\u4ee5\u53ca\u6307\u5411\u672c\u5730\u548c\u56fd\u5bb6\u8d44\u6e90\u7684\u6307\u5f15\uff0c\u5305\u62ec\uff1a <a href=\"https:\/\/www.versusarthritis.org\/about-arthritis\/newly-diagnosed\/\" rel=\"noopener\">\u4e0e\u5173\u8282\u708e<\/a>.<\/p>\n<p>\u60a3\u6709\u9057\u4f20\u6027\u98ce\u6e7f\u75c5 (IRD) \u5e76\u4f7f\u7528\u201c\u4e0e\u5173\u8282\u708e\u5171\u5b58\u201d\u5e94\u7528\u7a0b\u5e8f\u7684\u60a3\u8005\uff0c\u5c06\u4eab\u6709\u4e0e\u5176\u4ed6\u60a3\u8005\u76f8\u540c\u7684\u533b\u7597\u4fdd\u5065\u670d\u52a1\uff0c\u5e76\u80fd\u4ee5\u540c\u6837\u7684\u65b9\u5f0f\u8054\u7cfb\u4ed6\u4eec\u7684\u533b\u7597\u56e2\u961f\u3002\u7136\u800c\uff0c\u5e94\u7528\u7a0b\u5e8f\u4e2d\u7684\u4fe1\u606f\u6216\u8bb8\u53ef\u4ee5\u89e3\u7b54\u4ed6\u4eec\u7684\u4e00\u4e9b\u7591\u95ee\uff0c\u4ece\u800c\u51cf\u5c11\u4ed6\u4eec\u62e8\u6253\u62a4\u58eb\u70ed\u7ebf\u6216\u8054\u7cfb\u5168\u79d1\u533b\u751f\u7684\u6b21\u6570\u3002.<\/p>\n<p>\u6211\u4eec\u9f13\u52b1\u60a3\u8005\u5411\u4ed6\u4eec\u5728 Southmead\u3001Weston \u6216 Bristol Royal Infirmary \u7684\u533b\u9662\u987e\u95ee\u7533\u8bf7\u4f7f\u7528\u8be5\u5e94\u7528\u7a0b\u5e8f\u3002.<\/p>\n<p>\u827e\u739b\u00b7\u675c\u96f7\u65af\u535a\u58eb\u662fBBJ HIT\u7684\u8054\u5408\u4e3b\u4efb\uff0c\u4e5f\u662f\u897f\u82f1\u683c\u5170\u5927\u5b66\u5e03\u91cc\u65af\u6258\u5c14\u5206\u6821\u5065\u5eb7\u4e0e\u4e34\u5e8a\u7814\u7a76\u4e2d\u5fc3\u98ce\u6e7f\u75c5\u5b66\u548c\u81ea\u6211\u7ba1\u7406\u4e13\u4e1a\u7684\u526f\u6559\u6388\uff0c\u8be5\u4e2d\u5fc3\u4f4d\u4e8e\u2026\u2026 <a href=\"https:\/\/www.uhbristol.nhs.uk\/patients-and-visitors\/your-hospitals\/bristol-royal-infirmary\/what-we-do\/rheumatology\/meet-the-team\/the-uwe-rheumatology-research-team\/\" rel=\"noopener\">\u5e03\u91cc\u65af\u6258\u5c14\u548c\u97e6\u65af\u987f\u5927\u5b66\u533b\u9662 NHS \u57fa\u91d1\u4f1a\u4fe1\u6258\u57fa\u91d1<\/a>. \u5979\u8bf4\uff1a<\/p>\n<blockquote><p>\u201c\u6211\u4eec\u5f88\u9ad8\u5174\u201d\u4e0e\u5173\u8282\u708e\u5171\u5b58\u2019\u5e94\u7528\u7a0b\u5e8f\u73b0\u5728\u53ef\u4f9b\u8be5\u5730\u533a\u7684\u60a3\u8005\u4f7f\u7528\uff0c\u56e0\u4e3a\u6211\u4eec\u77e5\u9053\uff0c\u5982\u679c\u4eba\u4eec\u5728\u75be\u75c5\u521d\u671f\u5c31\u80fd\u5f97\u5230\u652f\u6301\u6765\u81ea\u6211\u7ba1\u7406\u75c7\u72b6\u548c\u75be\u75c5\u7684\u5f71\u54cd\uff0c\u8fd9\u5c06\u5728\u672a\u6765\u51e0\u5e74\u91cc\u5bf9\u4ed6\u4eec\u6709\u6240\u5e2e\u52a9\u3002\u201d<\/p>\n<p>\u201c\u6211\u8981\u611f\u8c22\u6240\u6709\u53c2\u4e0e\u4fe1\u606f\u6536\u96c6\u548c\u5e94\u7528\u7a0b\u5e8f\u5ba1\u6838\u7684\u4eba\u5458\uff0c\u7279\u522b\u662f\u6211\u4eec\u7684\u60a3\u8005\u5408\u4f5c\u4f19\u4f34\uff0c\u4ed6\u4eec\u7684\u7ecf\u9a8c\u975e\u5e38\u5b9d\u8d35\u3002\u201d<\/p>\n<p>\u6211\u4eec\u9f13\u52b1\u60a3\u8005\u5411\u4ed6\u4eec\u5728\u5357\u7c73\u5fb7\u533b\u9662\u3001\u97e6\u65af\u987f\u533b\u9662\u6216\u5e03\u91cc\u65af\u6258\u5c14\u7687\u5bb6\u533b\u9662\u7684\u533b\u9662\u987e\u95ee\u7533\u8bf7\u4f7f\u7528\u8be5\u5e94\u7528\u7a0b\u5e8f\u3002\u201d<\/p><\/blockquote>\n<p>\u827e\u739b\u00b7\u675c\u96f7\u65af\u535a\u58eb\u662fBBJ HIT\u7684\u8054\u5408\u4e3b\u4efb\uff0c\u4e5f\u662f\u897f\u82f1\u683c\u5170\u5927\u5b66\u5e03\u91cc\u65af\u6258\u5c14\u5206\u6821\u5065\u5eb7\u4e0e\u4e34\u5e8a\u7814\u7a76\u4e2d\u5fc3\u98ce\u6e7f\u75c5\u5b66\u548c\u81ea\u6211\u7ba1\u7406\u4e13\u4e1a\u7684\u526f\u6559\u6388\uff0c\u8be5\u4e2d\u5fc3\u96b6\u5c5e\u4e8e\u5e03\u91cc\u65af\u6258\u5c14\u548c\u97e6\u65af\u987f\u5927\u5b66\u533b\u9662NHS\u57fa\u91d1\u4f1a\u4fe1\u6258\u3002\u5979\u8bf4\uff1a<\/p>\n<blockquote>\n<blockquote><p>\u201c\u6211\u4eec\u5f88\u9ad8\u5174\u201d\u4e0e\u5173\u8282\u708e\u5171\u5b58\u2019\u5e94\u7528\u7a0b\u5e8f\u73b0\u5728\u53ef\u4f9b\u8be5\u5730\u533a\u7684\u60a3\u8005\u4f7f\u7528\uff0c\u56e0\u4e3a\u6211\u4eec\u77e5\u9053\uff0c\u5982\u679c\u4eba\u4eec\u5728\u75be\u75c5\u521d\u671f\u5c31\u80fd\u5f97\u5230\u652f\u6301\u6765\u81ea\u6211\u7ba1\u7406\u75c7\u72b6\u548c\u75be\u75c5\u7684\u5f71\u54cd\uff0c\u8fd9\u5c06\u5728\u672a\u6765\u51e0\u5e74\u91cc\u5bf9\u4ed6\u4eec\u6709\u6240\u5e2e\u52a9\u3002\u201d<\/p>\n<p>\u201c\u6211\u8981\u611f\u8c22\u6240\u6709\u53c2\u4e0e\u4fe1\u606f\u6536\u96c6\u548c\u5e94\u7528\u7a0b\u5e8f\u5ba1\u6838\u7684\u4eba\u5458\uff0c\u7279\u522b\u662f\u6211\u4eec\u7684\u60a3\u8005\u5408\u4f5c\u4f19\u4f34\uff0c\u4ed6\u4eec\u7684\u7ecf\u9a8c\u975e\u5e38\u5b9d\u8d35\u3002\u201d<\/p><\/blockquote>\n<\/blockquote>\n<p>\u53c2\u4e0e\u5e94\u7528\u7a0b\u5e8f\u5f00\u53d1\u7126\u70b9\u5c0f\u7ec4\u7684\u60a3\u8005\u4e4b\u4e00\u6731\u8389\u8bf4\uff1a<\/p>\n<blockquote>\n<blockquote><p>\u201c\u6211\u4e00\u76f4\u5728\u4f7f\u7528 Living With \u8fd9\u6b3e\u5e94\u7528\uff0c\u53d1\u73b0\u5b83\u771f\u7684\u5f88\u6709\u5e2e\u52a9\uff0c\u4fe1\u606f\u91cf\u4e5f\u5f88\u4e30\u5bcc\u3002\u5b83\u4e0d\u4ec5\u4e3a\u6211\u63d0\u4f9b\u4e86\u5173\u4e8e\u708e\u75c7\u6027\u75be\u75c5\u7684\u6e05\u6670\u6613\u61c2\u7684\u5efa\u8bae\u548c\u4fe1\u606f\uff0c\u8fd8\u6307\u5bfc\u6211\u5982\u4f55\u5e94\u5bf9\u8fd9\u79cd\u75be\u75c5\u5bf9\u6211\u7684\u751f\u6d3b\u5176\u4ed6\u65b9\u9762\u9020\u6210\u7684\u8fde\u9501\u53cd\u5e94\u3002\u8fd9\u6b3e\u6613\u4e8e\u4f7f\u7528\u7684\u5e94\u7528\u5df2\u7ecf\u6210\u4e3a\u6211\u83b7\u53d6\u53ef\u9760\u4fe1\u606f\u7684\u9996\u9009\uff0c\u6db5\u76d6\u4e86\u4ece\u836f\u7269\u526f\u4f5c\u7528\u5230\u8eab\u5fc3\u5065\u5eb7\u3001\u4ece\u5bb6\u5c45\u6539\u9020\u5230\u51fa\u884c\u652f\u6301\u7b49\u65b9\u65b9\u9762\u9762\u3002\u6211\u7ecf\u5e38\u4f7f\u7528\u5b83\uff0c\u800c\u4e14\u5c06\u6765\u80af\u5b9a\u8fd8\u4f1a\u7ee7\u7eed\u4f7f\u7528\u3002\u201d<\/p><\/blockquote>\n<\/blockquote>\n  <\/div>\r\n    <div class=\"mt-5 flex flex-row gap-x-6 uppercase text-lg font-bold text-primary items-center leading-normal\">\n    <div class=\"scriptlesssocialsharing\"><p class=\"scriptlesssocialsharing__heading\">\u5206\u4eab\uff1a<\/p><div class=\"scriptlesssocialsharing__buttons\"><a class=\"button twitter\" target=\"_blank\" href=\"https:\/\/twitter.com\/intent\/tweet?text=App%20supports%20newly%20diagnosed%20IRD%20patients%20to%20manage%20their%20symptoms%20better&#038;url=https%3A%2F%2Fbnssghealthiertogether.org.uk%2Fzh%2Fnews%2Fapp-supports-newly-diagnosed-ird-patients-to-manage-their-symptoms-better%2F&#038;via=nhsuk&#038;related=nhsuk\" rel=\"noopener noreferrer nofollow\"><svg xmlns=\"http:\/\/www.w3.org\/2000\/svg\" viewbox=\"0 0 512 512\" class=\"scriptlesssocialsharing__icon twitter\" fill=\"currentcolor\" height=\"1em\" width=\"1em\" aria-hidden=\"true\" focusable=\"false\" role=\"img\"><!--! 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