Understanding autism

    Autism is a neurodevelopmental condition that is present from birth, although autistic traits can be recognised at any age.

    Autism represents a spectrum of differences, which means that autistic people all have different strengths and can face different challenges. However, there are some common signs of autism and particular traits which are recognised during the diagnosis process.

    Autism spectrum disorder (ASD) or autism spectrum condition (ASC) are the medical terms used to describe autism. The term Asperger syndrome was historically used to describe a particular form of autism, usually in people who do not have significant language developmental delay or a learning disability. However, it is no longer given as a distinct diagnosis and is now considered to be part of the different autism profiles that exist within the overarching diagnosis of ASC.

    The name Asperger syndrome is also avoided by many now due to what is known about Hans Asperger’s history. Read more about the term Asperger syndrome on the National Autistic Society website.

    It is estimated that at least 1 in 100 people are autistic, although more recent studies indicate that autism may be much more common than this.

    “People say that I don’t look autistic – but there isn’t a look to autism”

    Kit

    Autism support

    A range of support is available for autistic children, young people and adults. This includes local specialist organisations, peer support groups, autism charities, advocacy services, emotional health support services and more.

    Help is also available for family members who need it, with a range of peer-led groups and organisations available in the Bristol, North Somerset and South Gloucestershire community.

    Find out more about local and national support for autism using the buttons below.

    Autistic traits

    Autism is a spectrum condition that affects people in different ways. It is not linear, and the strengths and challenges that exist as part of someone’s autism can change over their lifetime.

    To learn more about the signs of autism in children, young people and adults, visit Signs of autism (NHS) or What is autism? (National Autistic Society).

    Signs of autism

    Autistic people may:

    • face social communication and interaction challenges
    • have differences in sensory processing, such as being over-sensitive or
      under-sensitive to certain stimuli such as sound, light, touch or taste
    • find it hard to always understand what others are thinking or feeling, and find it hard to say how they feel
    • take things very literally
    • prefer the same routines every day
    • have strong attention to detail
    • have a keen interest in certain subjects or activities.

    Other autistic characteristics can include:

    • not understanding social rules
    • avoiding eye contact (though many autistic people are comfortable making eye contact with others)
    • above average creative or technical skills
    • getting too close to other people or getting upset if someone touches or gets too close to you
    • repetitive behaviour such as hand flapping, rocking or twirling a pen, sometimes called ‘stimming’ (short for self-stimulating behaviour)
    • noticing small details, patterns, smells or sounds
    • liking to plan very carefully.

    Signs of autism in young children

    Signs of autism in young children can include:

    • not responding to their name
    • avoiding eye contact
    • not smiling when you smile at them
    • getting very upset if they do not like a certain taste, smell or sound
    • repetitive movements, such as flapping their hands, flicking their fingers or rocking their body
    • not talking as much as other children
    • not doing as much pretend play
    • repeating the same phrases

    Signs of autism can be different in boys and girls. Girls may show fewer signs of repetitive behaviour and seem to cope better in social situations, but withdraw from situations they find difficult.

    Read more about autism in women and girls in the National Autistic Society’s guide to autism in women and girls.

    How is autism diagnosed?

    The formal diagnostic criteria for autism look at two key sets of behaviours (to include social, emotional, cognitive and sensory behaviours):

    • Cluster A – Differences in social communication, social motivation and social interaction (which can create challenges)
    • Cluster B – Repetitive and restrictive patterns of behaviours or interests (which include sensory experiences).

    If you believe that you or your child are displaying signs of autism and you want to find out more, you can learn more about autistic traits on this page. If you would like to talk to someone about it, you can also speak to the following professionals:

    • Your health visitor for children under five
    • The Special Educational Needs Coordinator (SENCO) for children in school – if you don’t know who that is, the school’s office will be able to help
    • Your GP or another healthcare professional.

    They may suggest an autism assessment.

    Some people may recognise signs of autism in themselves but choose not to pursue a diagnosis. If you feel you may be autistic but don’t want a diagnosis, there is plenty of autism support still available should you need it.

    Read more about autism support in the support and advice section of this website.

    The Bristol Autism Spectrum Service (BASS) oversees the diagnosis process for adults.

    Find out more about BASS services.

    If you are under the care of the Community Mental Health Team (CMHT) a diagnosis will be overseen by a professional within that team.

    Children and young people in Bristol, North Somerset and South Gloucestershire will usually be assessed for autism by Sirona care and health.

    Find out more about Sirona’s Autism Assessment Service.

    About autism assessments

    An autism assessment will be carried out by autism specialists. You may need to wait several months for an appointment, and it can take some time for the assessment to be completed, as a range of professionals need to be involved.

    If you need support whilst you’re waiting for an appointment, or for an assessment to be completed, you can talk to a healthcare professional about accessing support.

    Find out more about help available in Bristol, North Somerset and South Gloucestershire in the support and advice section of this website.

    All autism assessments are carried out using a set of criteria for autism, found in diagnostic manuals called the ICD-10 and the DSM-5.

    You can read more about these in the National Autistic Society’s guide to diagnostic criteria.

    Find out what might happen during an autism assessment on the NHS website guide to autism assessments.

    Autism assessments in Bristol, North Somerset and South Gloucestershire

    When a child or young person requires a diagnosis of autism, they will access the ‘Development and Behaviour pathway’. A ‘pathway’ is a term used in healthcare to describe a process that is followed in the diagnosis or treatment of a particular condition.

    Children and young people who are under the care of the Children and Adult Mental Health Services (CAMHS) may also be assessed through that service. Please speak to your lead professional in CAMHS if this is relevant to you or your child.

    Children and young people in Bristol, North Somerset and South Gloucestershire will usually be assessed for Autism and/or ADHD by Sirona care and health.

    If you are concerned that you, your child or young person you care for has Autism and/or ADHD, you can access self-help resources and support services on the Sirona website.  You can also visit your GP who may refer you to a specialist for an assessment.

    Avon and Wiltshire Mental Health Partnership NHS Trust’s Children and Adolescent Mental Health Service (CAMHS), does not take referrals for Autism and/or ADHD on its own, either to diagnose or to provide support. However, they do support children and young people with Autism and/or ADHD who have other mental health difficulties.

    What happens after an assessment for a child or young person?

    Once an assessment is complete, parents and carers are given information about support available at home and at school.

    A number of children who come in for an autism assessment will not receive a diagnosis of autism. If this is the case, the team will discuss your child’s strengths and difficulties and make recommendations about further sources of support your child should receive.

    Many of the children that are referred for autism assessments have other difficulties in addition to or instead of autism that may need further assessment. If this is the case children will be referred on to onto the relevant services

    Assessments for adults

    The referral route for adult assessments is via your GP. Other healthcare professionals and trusted professionals can also provide you with guidance and help you to access support, but your GP will usually be the person who refers you to begin the diagnosis process. Your GP may be able to suggest some support options for you instead of or as well as referring you for an assessment.

    “I’ve proved that with the right support, we can all have hope”

    Arsenal